authors speak eloquently for families, parents, prospective parents, and
health care professionals across many disciplines who share in the experiences of life with, and without, a hoped-for 'perfect baby.' A thread of continuity runs across the gestational journeys of real parents grappling with bad and sad news, complex interwoven lives, and the
hard work of seeking to bring joy into brief, yet eternal, moments
together with their babies. The book will mean so much to those who have
already endured these trials as well as those who are met daily with
— Brian S. Carter, M.D., neonatologist, pediatric bioethicist, palliative care expert, and lead author of Palliative Care for Infants, Children, and Adolescents
"A Gift of Time will be an invaluable resource to parents who have received the news that their baby has a condition that will cause the baby to die either during the pregnancy or shortly after birth. At such a time, most parents feel very alone. In this beautifully written, touching book, Kuebelbeck and Davis offer practical advice interwoven with stories, insights and experiences from 120 mothers and fathers who have walked this path. It validates the feelings and fears that many parents in this situation face and will help them embrace the short amount of time they will share with their baby. It is a must-read not only for parents who find themselves facing such a heart-wrenching situation, but also for those who care for and support these families. It will ensure that any parent will be given all of the knowledge, options, information and resources they need to cherish the precious gift of their baby's life."
— Share Pregnancy & Infant Loss Support
"A wonderful book ... it is a great asset for couples who have not yet made a decision or who have already decided on a path forward. For childbirth educators, this is an important read that will introduce you to new options of perinatal hospice and palliative care, and help you serve as another source of support for families that face this type of birth and loss."
— Jeanine M. Estrada, International Journal of Childbirth Education
“My team frequently counsels families coping with the heartache of managing a fetus or child with severe malformations that result in a life-limiting condition. We offer Ms. Kuebelbeck’s book to them, as many have found it a comforting resource. Her personal story and compassionate insights can help some families face the practical and emotional challenges they find along their journey."
— Simon Manning MD, neonatologist and director of the Perinatal Palliative Care Program at Brigham and Women’s Hospital, Boston, Massachusetts
"It offers hopeful options for families facing
heartbreaking choices ... it's a surprisingly moving and even uplifting
read for anybody, particularly those of us who love children with