|
About the authors
Amy Kuebelbeck, M.A., is a
freelance writer and former reporter and editor for The Associated
Press and other news organizations. She describes her experience of continuing a pregnancy with a terminal prenatal diagnosis in her memoir, Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life (Loyola Press, 2003), represented by literary agent Brian DeFiore of
DeFiore and Company Author Services, New York, NY. The book received attention from a variety of media, and Publishers Weekly
called it "exquisite." The book also was published in Italy as Aspettando Gabriel (Edizioni
San Paolo, Milan, 2005) and in South Korea (Hainaim Publishing, Seoul, 2006). Her son, Gabriel, was
diagnosed prenatally with hypoplastic left heart syndrome (HLHS) and died
shortly after his full-term birth in 1999. Ms. Kuebelbeck edits the Web site Perinatal Hospice.org and also has
been
invited to speak to medical groups and others around the
country about perinatal hospice and the issues
raised in her book. She has been quoted by media including The New York
Times and MSNBC.com in stories about perinatal hospice and
related issues, and she was invited to contribute to a new book about Elisabeth Kübler-Ross, Tea with Elisabeth.
For a sampling of Ms. Kuebelbeck's speaking events and media coverage, please visit www.waitingwithgabriel.com.
Deborah L. Davis, Ph.D.,
is a developmental psychologist and writer who specializes in the
emotional aspects of coping with crisis during pregnancy and infancy,
including medical ethics and decision-making. She is the author of
four books for bereaved parents: Empty Cradle, Broken Heart (Fulcrum, 1996), Loving and Letting Go (Centering, 1993; 2002), Fly Away Home (Centering, 2000) and Stillbirth, Yet Still Born (PILC, 2000). As a member of the Colorado Collective for Medical
Decisions, she collaborated in writing neonatal guidelines to support
ethical and humane decision-making in the NICU (1999). She is a founding member and on the board of the Pregnancy Loss and Infant Death Alliance, a national group that promotes awareness and parent support, and
supports the professionals who work with these families. Her newest
book is Parenting Your Premature Baby and Child: The Emotional Journey
(Fulcrum, 2004), written with Mara Tesler Stein, Psy.D.. Dr. Davis is
regularly invited to write articles for professional periodicals and
parent support materials, and she is on the expert panel of Pregnancy.org.
|
|
