Perinatal Hospice and Palliative Care
A Gift of Time
Media coverage related to perinatal hospice and palliative care
Featured stories
Recent coverage
"Perinatal hospice offers an alternative for parents of fetuses with terminal conditions," by Erica Cohen, Philadelphia Inquirer health blog, April 11, 2013.
"Perinatal and neonatal palliative care in the spotlight," by Sue Boucher. eHospice: Palliative care news, views, and inspiration from around the world. March 14, 2013
"A Gift of Time: Perinatal hospice is an unexpected source of joy and peace," by Deborah L. Davis, Ph.D., Psychology Today blog, Dec. 15, 2011.
"Book shares stories of perinatal hospice," by Terri Mauro, About.com, Feb. 8, 2012.
"Hospice in the womb," by Carolyn Moynihan, MercatorNet, Auckland, New Zealand, Dec. 9, 2011.
"Five Hours with Raja," a 2010 documentary film produced in New Zealand by director Anna McKessar. Tells the story of Claudia and Amit, a couple expecting a baby with anencephaly, who choose to embrace Raja's life. Broadcast on Al-Jazeera in December 2011 and available on YouTube.
"Network being formed to help parents whose unborn babies are ill," Catholic New York, Feb. 8, 2012.
"Saving Edwards," a 2010 documentary film produced in the Czech Republic by Dagmar Smržová. Tells the story of a couple expecting a baby with Edwards Syndrome (Trisomy 18) who choose to continue their pregnancy despite pressure from their doctors.
Orléans EMC newspaper, Ottawa, Ontario. "Mother recalls short time with son: Seven 'perfect' says she will cherish forever," by Tony Muma, Nov. 17, 2011.
Mainstream media
About.com, Morrow A. "The Tiniest of Patients: Perinatal hospice." April 17, 2008.
Bend (Oregon) Bulletin, Hawryluk M. "A gradual goodbye: Faced with a decision no one would want to make, a Redmond family finds support after ill-fated pregnancy" and "Perinatal hospice helps parents in difficult time," Sept. 13, 2007.
Buffalo (N.Y.) News, Davis HL. "Handling darkness at the dawn of life: Hospice for infants." Oct. 23, 2007.
Buffalo (N.Y.) News, Burtis A. "Grief helps us to see what's truly important." Oct. 2, 2008.
Charlotte (N.C.) Observer, Garloch K. "99 minutes: A life, a legacy." Nov. 14-17, 2010. Series included multiple stories, including "Acknowledging these parents' special grief," Nov. 15, 2010.
Cleveland Magazine, Aungst H. "Georgianna's Choice," June 2008.
Cleveland Plain-Dealer, Townsend A. "Perinatal hospices prepare families for inevitable loss" and "Pair's book on perinatal hospice due in 2010." Aug. 10, 2008.
Dallas Morning News, Hancock L. "Choosing Thomas: A family's decision to let their son live, if only for a brief time." Aug. 30 and Sept. 6, 2009.
Denver Post, Augé K. "Hospices help shared grief: Through hospice programs, parents get help in coping with an infant's death," April 9, 2007.
Des Moines Register, Gifford J. "Support program keys on birth losses." Oct. 10, 2007.
Des Moines Register, Villanueva-Whitman E. "Honored to help families." April 5, 2011.
Deseret (Utah) Morning News, Jarvik E. "When a birth is also a death: Angel Watch helps parents celebrate life — however brief," March 1, 2008.
Fredericksburg (Va.) Free Lance-Star, Dyson C. "The brief life of Baby Paul." Sept. 27, 2009.
Gainesville (Ga.) Times, Gilbert D. “When birth ends in loss: Medical Center's new hospice program helps parents cope with grief,” May 20, 2007.
Grand Rapids Press, Albanese E. "Family shares how hospice program prepared them for short time with daughter with fatal disorder." October 26, 2009.
Greenville (S.C.) News, Osby L. "'You know he was here': Couples whose babies are destined to die get loving support through network." July 1, 2008.
Kalamazoo (Michigan) Gazette, Mah LS. "When parents know they'll lose a baby: Kalamazoo-area programs help them make the most of their short time together." August 13, 2009.
Kansas City Star, Kavanaugh LH. "Love to last a lifetime,""Thanks to Alexandra's House, no family need grieve alone,""There's no shortcut through grief,""Zeke's gift: 'Hi, this is Mommy,'" and More resources package on perinatal hospice. April 15-16, 2007.
Los Angeles Times, Simon S. "Grief, gratitude and Baby Lee." Jan. 28, 2006, p. A1.
MSNBC.com, "When a baby is destined to die: Perinatal hospices support families with a terminal prenatal diagnosis," by Linda Dahlstrom, March 24, 2008.
New York Times, Banerjee N. "A place to turn when a newborn is fated to die," March 13, 2007, p. A1. Video
Newsday, Talan J. "Preparing a welcome and saying farewell," Jan. 6, 2004, p. A36.
Orange County (Calif.) Register, Ritchie EI. "They don't regret a single second." Oct. 9, 2008.
Orléans EMC newspaper, Ottawa, Ontario. "Mother recalls short time with son: Seven 'perfect' says she will cherish forever," by Tony Muma, Nov. 17, 2011.
Polish Radio, Warsaw, Najfeld J. "Dignity in suffering." May 1, 2007.
Public Radio Exchange, Eddy M, producer. Four-part radio series on perinatal hospice. Sept. 25, 2005.
Radio Health Journal, MediaTracks Communications, Pence R. September 2008; rebroadcast January 2011. (Click on podcast archives to listen)
Raising Arizona Kids, Bashaw MA. "Finding purpose in grief: When birth and death merge." March 2011.
Sacramento Bee, Creamer A. "Baby Faith never left the hospital. But Tamara Scott's photographs give grieving parents a life to remember," Sept. 1, 2006, p. J1.
St. Petersburg (Fla.) Times, Rubenstein M. "Hospice doula becomes 'angel' amid loss." Sept. 11, 2009.
Seattle Times, Ostrom CM. "Seeking less-bitter ways to end conflicts on kids' medical care," July 13, 2007, p. A1.
Sioux Falls (S.D.) Argus-Leader, Weinstein D. "Solace for sick kids." April 27, 2008.
Today Show, NBC-TV, Sanders K. "Photographer helps parents heal," March 5, 2008
Toledo Blade, McKinnon JM. "Fatal diagnoses in the unborn bring new needs: Perinatal hospice becomes more common." Oct. 26, 2007.
Washington Times, Duin J. "Choosing not to abort babies with disabilities," May 10, 2009.
Wichita Eagle, Schideler K. "Aiden: A Life to Remember." Nov. 29, 2009.
About.com, Morrow A. "The Tiniest of Patients: Perinatal hospice." April 17, 2008.
Bend (Oregon) Bulletin, Hawryluk M. "A gradual goodbye: Faced with a decision no one would want to make, a Redmond family finds support after ill-fated pregnancy" and "Perinatal hospice helps parents in difficult time," Sept. 13, 2007.
Buffalo (N.Y.) News, Davis HL. "Handling darkness at the dawn of life: Hospice for infants." Oct. 23, 2007.
Buffalo (N.Y.) News, Burtis A. "Grief helps us to see what's truly important." Oct. 2, 2008.
Charlotte (N.C.) Observer, Garloch K. "99 minutes: A life, a legacy." Nov. 14-17, 2010. Series included multiple stories, including "Acknowledging these parents' special grief," Nov. 15, 2010.
Cleveland Magazine, Aungst H. "Georgianna's Choice," June 2008.
Cleveland Plain-Dealer, Townsend A. "Perinatal hospices prepare families for inevitable loss" and "Pair's book on perinatal hospice due in 2010." Aug. 10, 2008.
Dallas Morning News, Hancock L. "Choosing Thomas: A family's decision to let their son live, if only for a brief time." Aug. 30 and Sept. 6, 2009.
Denver Post, Augé K. "Hospices help shared grief: Through hospice programs, parents get help in coping with an infant's death," April 9, 2007.
Des Moines Register, Gifford J. "Support program keys on birth losses." Oct. 10, 2007.
Des Moines Register, Villanueva-Whitman E. "Honored to help families." April 5, 2011.
Deseret (Utah) Morning News, Jarvik E. "When a birth is also a death: Angel Watch helps parents celebrate life — however brief," March 1, 2008.
Fredericksburg (Va.) Free Lance-Star, Dyson C. "The brief life of Baby Paul." Sept. 27, 2009.
Gainesville (Ga.) Times, Gilbert D. “When birth ends in loss: Medical Center's new hospice program helps parents cope with grief,” May 20, 2007.
Grand Rapids Press, Albanese E. "Family shares how hospice program prepared them for short time with daughter with fatal disorder." October 26, 2009.
Greenville (S.C.) News, Osby L. "'You know he was here': Couples whose babies are destined to die get loving support through network." July 1, 2008.
Kalamazoo (Michigan) Gazette, Mah LS. "When parents know they'll lose a baby: Kalamazoo-area programs help them make the most of their short time together." August 13, 2009.
Kansas City Star, Kavanaugh LH. "Love to last a lifetime,""Thanks to Alexandra's House, no family need grieve alone,""There's no shortcut through grief,""Zeke's gift: 'Hi, this is Mommy,'" and More resources package on perinatal hospice. April 15-16, 2007.
Los Angeles Times, Simon S. "Grief, gratitude and Baby Lee." Jan. 28, 2006, p. A1.
MSNBC.com, "When a baby is destined to die: Perinatal hospices support families with a terminal prenatal diagnosis," by Linda Dahlstrom, March 24, 2008.
New York Times, Banerjee N. "A place to turn when a newborn is fated to die," March 13, 2007, p. A1. Video
Newsday, Talan J. "Preparing a welcome and saying farewell," Jan. 6, 2004, p. A36.
Orange County (Calif.) Register, Ritchie EI. "They don't regret a single second." Oct. 9, 2008.
Orléans EMC newspaper, Ottawa, Ontario. "Mother recalls short time with son: Seven 'perfect' says she will cherish forever," by Tony Muma, Nov. 17, 2011.
Polish Radio, Warsaw, Najfeld J. "Dignity in suffering." May 1, 2007.
Public Radio Exchange, Eddy M, producer. Four-part radio series on perinatal hospice. Sept. 25, 2005.
Radio Health Journal, MediaTracks Communications, Pence R. September 2008; rebroadcast January 2011. (Click on podcast archives to listen)
Raising Arizona Kids, Bashaw MA. "Finding purpose in grief: When birth and death merge." March 2011.
Sacramento Bee, Creamer A. "Baby Faith never left the hospital. But Tamara Scott's photographs give grieving parents a life to remember," Sept. 1, 2006, p. J1.
St. Petersburg (Fla.) Times, Rubenstein M. "Hospice doula becomes 'angel' amid loss." Sept. 11, 2009.
Seattle Times, Ostrom CM. "Seeking less-bitter ways to end conflicts on kids' medical care," July 13, 2007, p. A1.
Sioux Falls (S.D.) Argus-Leader, Weinstein D. "Solace for sick kids." April 27, 2008.
Today Show, NBC-TV, Sanders K. "Photographer helps parents heal," March 5, 2008
Toledo Blade, McKinnon JM. "Fatal diagnoses in the unborn bring new needs: Perinatal hospice becomes more common." Oct. 26, 2007.
Washington Times, Duin J. "Choosing not to abort babies with disabilities," May 10, 2009.
Wichita Eagle, Schideler K. "Aiden: A Life to Remember." Nov. 29, 2009.
Health media
Canadian Medical Association Journal, Collier R. Providing hospice in the womb. Feb. 17, 2011.
Catholic Health World, "Perinatal hospice fills care gaps for families facing prenatal, newborn death." Catholic Health Association of the United States, Vol. 26, No. 5, March 15, 2010.
Nurseweek Nursing Spectrum, Nurse.com, Clegg T. "Howard County Nurse Expands Perinatal Hospice Program." Nov. 2, 2009.
Specialized media
"A Gift of Time: Perinatal hospice is an unexpected source of joy and peace," by Deborah L. Davis, Ph.D., Psychology Today blog, Dec. 15, 2011.
"Hospice in the womb," by Carolyn Moynihan, MercatorNet, Auckland, New Zealand, Dec. 9, 2011.
"Saving Edwards," a 2010 documentary film produced in the Czech Republic by Dagmar Smržová. Tells the story of a couple expecting a baby with Edwards Syndrome (Trisomy 18) who choose to continue their pregnancy despite pressure from their doctors.
"Five Hours with Raja," a 2010 documentary film produced in New Zealand by director Anna McKessar. Tells the story of Claudia and Amit, a couple expecting a baby with anencephaly, who choose to embrace Raja's life. Broadcast on Al-Jazeera and available on YouTube.
"Perinatal hospice: New theories about what choice means," by Allison M. Wheelan, Harvard Law School Bill of Health blog, April 6, 2013.
"Perinatal hospice: From womb to grave with love," by Chuck Colson, Crosswalk, Sept. 1, 2009.
Focus on the Family with Dr. Bill Maier
"Handle with care: For parents facing perinatal loss," seven-part video series by Focus on the Family featuring Todd and Angie Smith, author of "I Will Carry You"