ALABAMA

Perinatal Hospice and Palliative Care at Hospice Family Care, in affiliation with Huntsville Hospital. Contact: Kristina Johnson RN, (256) 650-1212. Huntsville, Alabama


ALASKA

Fairbanks Memorial Hospital perinatal bereavement program. Contact: (907) 458-3014. Fairbanks, Alaska

Hospice of Anchorage, providing support to parents before and after birth as well as coordination with medical providers. Contact: Bereavement services coordinator Lisa Fleischer, (907) 561-5322. Anchorage, Alaska


ARKANSAS

Arkansas Fetal Diagnosis and Management, a collaborative program of the University of Arkansas for Medical Sciences and Arkansas Children's Hospital. Contact: Lori Gardner RN, (866) 273-3835. Little Rock, Arkansas

St. Vincent Health System Journey perinatal bereavement program, including perinatal hospice support. See list of services and video. Contact: RTS bereavement coordinator Lynette Spruell LPN. Little Rock, Arkansas


ARIZONA

MISS Perinatal Palliative CARES Program. Contact: (602) 279-MISS (6477) or (888) 455-MISS (6477)

EMBRACE Palliative Care Foundation. Contact: Berdette Carrasco RNC or Dana Southworth LMSW, (623) 330-4963 or email.

Hospice of the Valley Pediatric Care, including perinatal hospice. Phoenix, Arizona

Perinatal LOSS Palliative Care Program at Northern Arizona Healthcare (Flagstaff Medical Center & Verde Valley Medical Center). Contact: Perinatal Educator Lynn Harris RN BSN, (928) 214-3997.  Flagstaff, Arizona



CALIFORNIA

Angel Babies/Bebitos Angelitos of Hinds Hospice, Fresno and Merced, California


Community Hospice Gabriel's Friends pediatric hospice, including perinatal support. Modesto, California


Elizabeth Hospice Pediatric and Perinatal Hospice Care, in connection with the affiliated Center for Compassionate Care, which provides grief counseling and support. Contact: Center for Compassionate Care Director Lizabeth Sumner RN BSN, (760) 737-2050. Escondido, California


George Mark Children's House, including perinatal palliative care consults. San Leandro, California


Journey to Remember, a Forever Footprints perinatal comfort care program. Contact: Amanda Balderrama RN BSN, (800) 714-9320. (See their video.) Riverside/San Bernardino/Ontario, California

Loma Linda University Children’s Hospital Maternal Fetal Medicine Clinic, including perinatal palliative care. Contact: Perinatal palliative care coordinator Katherine Wall RN BSN MEd. Loma Linda, California


Perinatal Hospice Services, Life Choices Pregnancy Clinic of the Ojai Valley. Ojai, California


Rady Children's Hospital Perinatal Hospice Care. Contact: Krishelle Marc-Aurele MD, board-certified in neonatology and hospice & palliative medicine, (619) 543-3759. San Diego, California

St. Joseph Health System Home Health Perinatal Comfort Care. Contact: Suzanne Engelder MSW, (714) 712-9559 x3311. Co-operated with St. Joseph Hospital Maternity Perinatal Palliative Care. Orange, California


St. Joseph Health System Mission Hospital Maternity Center Perinatal Hospice Care. Mission Viejo and Laguna Beach, California

Scripps Health Perinatal Hospice Care, with hospital locations in La Jolla, Chula Vista, Encinitas, and San Diego, California

TrinityCare Hospice TrinityKids Care. Contact Jamie Andrews, (310) 543-3400. Los Angeles, California


University of California Irvine Health Paloma Comfort Care. Orange, California


University of California San Francisco Benioff Children's Hospital Integrated Pediatric Pain & Palliative Care (IP3). Contact: Palliative care nurse practitioner Maggie Root PNP or perinatal palliative care coordinator and grief/loss counselor Summer Segal MS LCGC, (415) 353-1328. San Francisco, California


University of Southern California Keck School of Medicine Institute for Maternal Fetal Health perinatal hospice & palliative care. Los Angeles, California



COLORADO

Hospice del Valle, including prenatal support. Contact: Social worker and bereavement counselor Mary Jane Cisneros, (719) 589-9019. Alamosa, Colorado

String of Pearls, experienced OB nurses providing in-person perinatal hospice support in the Denver area and long-distance support to families nationwide. Contact: Executive director Laura Huene BSN RN CPLC. Littleton, Colorado



CONNECTICUT

Perinatal Hospice Program, Regional Hospice and Home Care of Western Connecticut. Brochure. Contact: Coordinator Christine Mastropietro RN, (203) 702-7400. Danbury, Connecticut



DELAWARE

IMPACT (Infant, Maternal, Pediatric Advanced Care Team) perinatal palliative care, Christiana Care Health Systems. Contact: Office of Neonatology, (302) 733-2410. Newark, Delaware


FLORIDA

AMEND (Aiding a Mother/Father Experiencing Neonatal & Infant Death), in collaboration with the bereavement program at Florida Hospital Tampa. Contact: AMEND program director Karen Frazier RN, (813) 631-9519. Tampa, Florida

Cherishing the Journey, Inc. Perinatal palliative care and infant loss support, memory boxes, and resources for siblings. Contact: Jennifer Harden, (321) 750-8354. Based in Melbourne, Florida, and serving surrounding counties

Community PedsCare perinatal program, a program of Community Hospice of Northeast Florida in collaboration with Wolfson Children's Hospital, Nemours Children's Clinic and the University of Florida. Contact: Director Terry Eason, (904) 407-6302, Jacksonville, Florida


Hope Kids Care, a program of Hope HealthCare Services. Contact: Malia Rardin, (239) 482-4673. Serving southwest Florida, based in Fort Myers, Florida

Perinatal ComfortCare of Tampa, Life Impact Network. Contact: Kathy DeSanto RN, (813) 931-1804 ext. 211. Tampa, Florida

Suncoast Hospice perinatal loss program. Contact: Julie Douglass, (727) 523-2425. Clearwater, Florida

The Mending Tree at Circle of Love Center, Chapters Health System. Contact: Jacqueline Warner Garman, LCSW, ACHP-SW, (813) 357-5671. Tampa, Florida


GEORGIA

Augusta University Department of Obstetrics and Gynecology maternal-fetal medicine specialists fetal hospice. Augusta, Georgia


Hospice Atlanta Visiting Nurse Health System Pediatric Hospice Program, including care before birth. (404) 869-3000. Atlanta, Georgia

Hospice of Northeast Georgia Medical Center perinatal program, (770) 533-8888. Gainesville, Georgia

H.E.A.R.T.strings Perinatal Palliative Care, Northside Hospital Perinatal Loss Office, Atlanta, Georgia

Sound Journeys Perinatal Hospice. Columbus, Georgia



HAWAII

Perinatal Hospice of Hawai'i. Contact: Maria LaFond RN, (406) 465-3265. Honolulu, Oahu, Hawaii


IDAHO

Butterfly's Embrace, a perinatal palliative care service of St. Luke's Health System labor and delivery unit. Contact: Jennifer Jonely RN, (208) 381-2651. Boise, Idaho

Daniel's Gift supportive counseling services, St. Luke's Health System Fetal Medicine Program. Contact: Coordinator Jacque Brown RN, (208) 410-9174. Twin Falls, Idaho


Saint Alphonsus Regional Medical Center Maternal-Fetal Medicine. Contact: Perinatal bereavement coordinator Christina Babin, (208) 367-7488. Boise, Idaho



ILLINOIS

A Bella Baby OB/GYN perinatal hospice care. Contact: Anthony J. Caruso MD MPH, (630) 810-9658. Downers Grove, Illinois


Advocate Lutheran General Hospital Perinatal Palliative Care Program. Contact: Palliative care coordinator Kathie Kobler MS RN, (847) 723-7911. Park Ridge, Illinois

BJC Hospice perinatal hospice care, Alton, Illinois (see also listings in Missouri)

Carle Hospital Circle of Care Perinatal Bereavement Program. Contact MaryLou Bedient MSW MA at (217) 383-4575 or Caroline Speirs-Coffill MSW at (217) 362-0436. Urbana, Illinois

Children’s Hospital of Illinois Perinatal Supportive Care. Part of OSF Healthcare System. Contact: Perinatal supportive care coordinator Sarah Greer RNC-OB, (309) 624-2404. Peoria, Illinois


Evanston Hospital of NorthShore University HealthSystem Perinatal Comfort Care Program. Contact: Coordinator Nancy Goldin LCSW, (847) 570-2400 or (847) 570-2883. Evanston, Illinois

Medical Arts Ltd. perinatal hospice support. Contact: Karla Polaschek MD, (309) 779-4285. Moline, Illinois (See also Women's Choice Center, Bettendorf, Iowa)


Northwest Community Hospital Perinatal Palliative Care Program. Contact: Jill Kottmeier RN, (847) 618-8415. Arlington Heights, Illinois. 


Prentice Women's Hospital/Northwestern Memorial Hospital perinatal and neonatal palliative care, in collaboration with the Bridges Pediatric Palliative Care Program at Lurie Children's Hospital. Contact: Neonatologist Natalia Henner MD or neonatologist Jessica Fry MD. Chicago, Illinois

Rush University Medical Center Fetal & Neonatal Medicine Program. Contact: Maria Reyes RNC MSN, (312) 942-7874. Chicago, Illinois


St. Alexius Medical Center Perinatal Palliative Care. Contact: Kristi Moran MSW, (847) 303-7946. Hoffman Estates, Illinois


The Haven Network Perinatal Hospice and Bereavement Center. Rockford, Illinois



INDIANA


Center for Hospice Care Life Transition Center, including perinatal support for families who receive a diagnosis during pregnancy. Contact: Bereavement coordinator Holly Farmer MA LMHC, (574) 255-1064. Mishawaka, Elkhart, and Plymouth, Indiana
 
Code Noah perinatal hospice, Community Health Network (video here). Indianapolis, Indiana

Deaconess Health System Hand in Hand Perinatal Palliative Care website and brochure, The Women's Hospital, (812) 842-4200. Newburgh, Indiana


Franciscan St. Francis Health perinatal hospice. Contact: Bereavement coordinator Joni Cutshaw BSN RNC CPLC, (317) 528-5199. Indianapolis, Indiana


Miriam's Blessing, a ministry of the Diocese of Fort Wayne-South Bend in collaboration with the peer-based parent support organization Be Not Afraid. Fort Wayne, Indiana

Pathways Support Program and resources, Riley Hospital for Children Perinatal-Fetal Center, Indiana University (IU) Health Maternity Center, (317) 962-8153. Indianapolis, Indiana

St. Vincent Indianapolis Hospital Center for Perinatal Loss, including perinatal hospice. Indianapolis, Indiana



IOWA

Blank Children's Hospital SHINE Program: Perinatal and Pediatric Palliative Care, UnityPoint Health. Contact: (515) 241-5750. Des Moines, Iowa

Mercy Medical Center Perinatal Hospice. Contact: Bereavement and perinatal hospice coordinator Ann Valdez BSN RNC, Mercy Women & Infants' Center, (515) 358-3030. Des Moines, Iowa

University of Iowa Children's Hospital Perinatal Palliative Care. Contact: Sheila B. Frascht RN, CHPPN, CPLC, Grief Services/Pediatric Palliative Care, (319) 356-7411. Iowa City, Iowa

Women's Choice Center, including perinatal support. Contact: Medical director Karla Polaschek MD. Bettendorf, Iowa (See also listing in Moline, Illinois)



KANSAS


Choices Medical Clinic perinatal hospice, (316) 687-2792. Wichita, Kansas

University of Kansas Medical Center KU Kids Healing Place prenatal and perinatal supportive care. Contact: Kathy Davis PhD, (913) 588-6336. Kansas City, Kansas

See also Children's Mercy Hospital Palliative Care Team (PaCT) and Children's Mercy Fetal Health Center. Kansas City, Missouri

See also Kansas City Hospice & Palliative Care Carousel Perinatal Program, Kansas City, Missouri



KENTUCKY

Bridges of Love, Baptist Health Lexington Perinatal Palliative Care Program, part of Mother and Baby Care. Contact: Perinatal bereavement coordinator Deborah Mueller RN BSN, (859) 260-6904. Lexington, Kentucky


Baptist Health Louisville Perinatal Palliative Care Program. Contact Perinatal Bereavement Coordinator Bonnie Hibbs MSN RNC CPLC, (502) 897-8327. Louisville, Kentucky



LOUISIANA

Woman's Hospital Perinatal Palliative Care. Baton Rouge, Louisiana

Perinatal Palliative Care Hospice Program, Hospice of Baton Rouge, (225) 767-4673. Baton Rouge, Louisiana



MARYLAND

Anne Arundel Medical Center Perinatal Loss and Palliative Care Program. Contact: Program coordinator Ann O'Sullivan RN, (443) 481-6989. Annapolis, Maryland

Chesapeake Kids Perinatal and Infant Loss Support Program, Hospice of the Chesapeake. Contact: Heather Silver LCSW-C, CPLC, The Life Center, (410) 987-2129. Annapolis and Landover, Maryland

Gilchrist Kids Perinatal Hospice and Palliative Care, Gilchrist Hospice Care, an affiliate of Greater Baltimore Medical Center. Contact: Program manager at (443) 849-8200. Hunt Valley, Maryland

Isaiah's Promise, parent-to-parent support provided locally and also long-distance. Email. Rockville, Maryland

Johns Hopkins Hospital perinatal palliative care support. Contact: Perinatal bereavement coordinator Dawn Thurman. See also their video. Baltimore, Maryland

Never Alone Perinatal Palliative Care Program, Holy Cross Hospital. Contact: Perinatal services coordinator Bethany Fox, (301) 754-7672. Silver Spring, Maryland

Rising Hope Perinatal Hospice, Howard County General Hospital (a member of Johns Hopkins Medicine). Contact: Mary Peroutka RN, (410) 884-4709. Columbia, Maryland


Shady Grove Medical Center perinatal hospice support. Contact: Clinical nurse manager Amber Richter BSN RNC, (240) 826-6134. Rockville, Maryland



MASSACHUSETTS

Baystate VNA and Hospice perinatal support, provided through the Massachusetts Pediatric Palliative Care Network. Springfield, Massachusetts

Brigham and Women's Hospital Perinatal Palliative Care Program. Contact: Neonatologist Simon Manning MD, (617) 732-8405. Boston, Massachusetts

Care Dimensions (formerly Hospice of the North Shore & Greater Boston) perinatal palliative care. Contact: Maureen Forbes MS CCLS, (978) 750-9335. Danvers, Massachusetts

Cranberry Hospice Fragile Footprints Pediatric Palliative Care. Contact: Administrator Deborah Dolaway, LICSW, (508) 746-0215. Plymouth, Massachusetts

Estrella's Program perinatal hospice, PediPathways Inc. pediatric hospice and palliative care agency serving the greater Boston area. Contact: Social services manager Elissa Bosley LCSW, (617) 774-1351. North Quincy, Massachusetts

Good Shepherd Pedi Pal, providing pediatric palliative care including perinatal support, Good Shepherd Community Care (formerly Hospice of the Good Shepherd), (617) 969-6130. Newton, Massachusetts

Hospice Care in The Berkshires pediatric palliative care, including prenatal support. Contact: Program director Christine Frederick LCSW, (413) 443-2994. Pittsfield, Massachusetts


Mass General Hospital for Children Perinatal Palliative Care. Contact: Perinatal Palliative Care team, (857) 237-CARE (2273). Boston, Massachusetts

Notre Dame Health Care Perinatal Palliative Care. Worcester, Massachusetts

Tufts Medical Center, Center for Perinatal Palliative Care. Contact: Director Linda Kleeman MD, (617) 636-8176. Boston, Massachusetts

Visiting Nurse Association & Hospice of Northern Berkshire. Contact: Kathie Tryon RN, (413) 664-4536. North Adams, Massachusetts

Home Health VNA/Merrimack Valley Hospice, (800) 475-8335 or (978) 552-4122. Lawrence, Massachusetts



MICHIGAN


Arbor Hospice/Hospice of Michigan Anchors Perinatal Program. Contact: Teri Turner RN MS CHPN, director of pediatric programming and clinical excellence. 24-hour Pediatric Support Line, covering most of the state of Michigan: (888) 247-5704. Grand Rapids and southeast Michigan

Angela Hospice Prenatal Program, Livonia, Michigan


Beaumont Health pediatric hospice, including prenatal support. Contact: Pediatric hospice clinical manager Kimberly Stewart RN BSN, 248-743-9400 (main) or 248-417-3607 (cell). Troy, Michigan

 Bronson Methodist Hospital Perinatal Palliative Care, (269) 341-7533. Kalamazoo, Michigan

Children's Hospital of Michigan Pediatric Palliative Care Team, also offering perinatal palliative care. Detroit, Michigan

Kaleidoscope Kids, Hospices of Henry Ford Health System, Detroit, Michigan

Perinatal Hospice and Tender Care of Washtenaw County. Contact: director Janet Holtz, (734)395-0400. Ann Arbor, Michigan



MINNESOTA

Abbott Northwestern Hospital, Birth Center Case Management Specialists, (612) 863-7585. Minneapolis, Minnesota

Allina Health Mother-Baby Center at United Hospital and Children's Hospitals and Clinics of Minnesota. Birth planning in special situations (PDF). Also Pediatric Advance Care Team referrals, including prenatally. Contact: Annette Klein RN, (651) 241-6206. St. Paul, Minnesota


Courageous Hearts prenatal diagnosis support, in collaboration with the peer-based parent support organization Be Not Afraid. Contact: (715) 969-4506. Duluth, Minnesota

Children's Hospitals and Clinics Palliative Care & Hospice Program, including referrals before birth. Minneapolis and St. Paul, Minnesota

Fairview Health Services perinatal palliative care, with services available at several hospitals and clinics in the Minneapolis-St. Paul area

HealthEast Maternity Care Precious Time personalized support for parents and their infants with life-limiting conditions. Services available at St. John’s Hospital in Maplewood, St. Joseph’s Hospital in St. Paul, and Woodwinds Health Campus in Woodbury


Hennepin County Medical Center Birth Center. Contact: (612) 873-5006 or high-risk clinical care coordinator Tamara Harvanko RN, (612) 873-6552. Minneapolis, Minnesota

Lakewood Health System perinatal hospice, (218) 894-8080 or (800) 525-1033. Staples, Minnesota

Maple Grove Hospital perinatal bereavement services. Contact: Sue Steen RN MS, (763) 581-2223. Maple Grove, Minnesota


Mayo Clinic Children's Center ComPASS: Comprehensive Pediatric and Adolescent Support Services, including perinatal palliative care. Rochester, Minnesota

Minnesota Birth Center, home-like, freestanding birth centers staffed by certified nurse-midwives and registered nurses, also offering perinatal hospice support. Founder and medical director: Steven E. Calvin MD, perinatologist. Affiliated with Associates in Women's Health, P.A. (612) 545-5311. Locations in Minneapolis and St. Paul, Minnesota

St. Cloud Hospital CentraCare Health Palliative Care, including prenatal support. Contact: Coordinator Terri McCaffrey MA APRN CNS, (320) 656-7021. St. Cloud, Minnesota

University of Minnesota Medical Center, Fairview and University of Minnesota Amplatz Children's Hospital, Fairview, Perinatal Palliative Care Program. Contact: Genetics counselor Meg Eilers, (612) 273-5635. Minneapolis, Minnesota



MISSISSIPPI


University of Mississippi Medical Center and Batson Children's Hospital Center for Maternal and Fetal Care, including palliative care. Contact: W. Richard Boyte MD, professor of pediatrics and division chief of pediatric palliative medicine. Jackson, Mississippi



MISSOURI

Alexandra's House, Kansas City, Missouri

Barnes Jewish Hospital and Children's Hospital of St. Louis Fetal Care Center Wings Perinatal Hospice Program. St. Louis, Missouri

BJC Hospice Perinatal Program in St. Louis, Sullivan, and Farmington, Missouri; also in Illinois. See their video


Cardinal Glennon Children's Medical Center Footprints, St. Louis, Missouri

Children's Mercy Hospital Palliative Care Team (PaCT) , in conjunction with Children's Mercy Fetal Health Center. Kansas City, Missouri

Kansas City Hospice & Palliative Care Carousel Perinatal Program, Kansas City, Missouri


MONTANA

Billings Clinic Perinatal Palliative Care. Contact: Diane Arkava LCSW, (406) 247-6344. Billings, Montana



NEBRASKA


Bergan Mercy Medical Center Perinatal Hospice, Alegent Health System. Contact: Coordinator Nancy Kadavy MSN APRN, (402) 398-6014. Omaha, Nebraska


Journey to Love, a peer ministry offering practical guidance and support, sponsored by the Archdiocese of Omaha and affiliated with Be Not Afraid. Contact: Whitney Bradley, (402) 551-9003, ext. 1306. Omaha, Nebraska

Methodist Women's Hospital Perinatal Comfort Care Program. Contact: perinatal comfort care liaison Nina Mohr BSN RN (402) 354-3488, or clinical nurse educator Mary Killpack MSN RN, (402) 354-5634. Omaha, Nebraska

Saint Elizabeth Regional Medical Center EMBRACE Perinatal Palliative Care and Hospice Program. Contact: EMBRACE coordinator, (402) 219-7065. Lincoln, Nebraska



NEW HAMPSHIRE

Aliyah Perinatal Hospice Support, Options for Women pregnancy resource center. Contact: Client services director Jennifer Tate RN, (603) 749-4441. Dover, New Hampshire


NEW JERSEY

Circle of Life Children's Center. Contact: Director of Program Services Sheila Walsh APRN BC, (973) 972-1743. Newark, New Jersey

Valley Health System Butterflies Program. Contact: Coordinator Mary Ann West RN MSN CHPN, (201) 291-6335. Paramus, New Jersey


Virtua Hospital "Lifecare for Little Ones" Perinatal Palliative Care Program. Contact: Ann Coyle RN BSN (856) 247-2232. Voorhees, New Jersey



NEW MEXICO

University of New Mexico Children's Hospital Special Delivery. Contact: Medical director Rebecca Moran MD, (505) 272-8955. Albuquerque, New Mexico


NEW YORK

A TIME, a Jewish support organization for those experiencing pregnancy loss and infertility. Contact: Malkie Klaristenfeld, director of services for pregnancy loss, (718) 686-8912. New York, New York

CareFirst Perinatal Palliative Care (formerly Southern Tier Hospice and Palliative Care), Corning, New York

CHOICES Pediatric Palliative Care Program, SUNY Upstate Medical University. Contact: Irene Cherrick MD, (315) 464-5294. Syracuse, New York

Circle of Hope Perinatal Bereavement Program, Hospice Care in Westchester and Putnam. Contact: Maribel Nazario, (914) 666-4228, ext. 336. Tarrytown, New York

CompassionNet perinatal palliative care program, Lifetime Care Home Health and Hospice. Contact: Alyssa Gupton LCSW, (800) 308-3914 or (585) 214-1333. Support available in Rochester, Buffalo, Syracuse, Utica, Binghamton, Elmira, and surrounding areas.

Diana's Hope, National Gianna Center for Women's Health and Fertility at St. Peter's Healthcare System, Regional Medical Campus of Drexel University College of Medicine. Contact: Anne Nolte MD, (212) 481-1219. New York, New York

Footprints on the Heart, Sisters of Charity Hospital. Contact: Nurse coordinator Fran Kane, (716) 862-1678. Buffalo, New York


Good Samaritan Hospital Gabriel's Courage perinatal hospice. Contact: Maribeth McKeever LCSW-R, (631) 828-7628. West Islip, New York

Good Samaritan Hospital Perinatal Bereavement Program. Contact: Mary Radatovich LMSW LCSW, (845) 368-5297. Suffern, New York

Hospice Buffalo Essential Care Perinatal Program. Contact: Kelley Clem RN, (716) 686-8173 or (716) 686-8006. Buffalo, New York


Hospice Care Network Perinatal Support. Contact: Mary Gravina CSW, director of bereavement, (631) 666-6873 x203. Long Island, New York

Maggie Rose Perinatal Bereavement Program, Bereavement Center of Westchester. Contact: Patty Donovan-Duff, (914) 961-2818, ext. 305. Tuckahoe, New York

New York-Presbyterian/Morgan Stanley Children's Hospital Neonatal Comfort Care program, including prenatal support. See video, website, and brochures in English and Spanish. Contact: Medical director and neonatologist Elvira Parravicini MD, New York City, New York


University of Rochester Perinatal Supportive Care Program, University of Rochester Medical Center. Contact: Director Erin Denney-Koelsch MD, assistant professor of medicine and pediatrics, (585) 273-1154. Rochester, New York


NORTH CAROLINA

Be Not Afraid, a private non-profit organization providing peer-based parent support including prenatal contact, birth and bereavement support, and followup for one year, as well as training resources for new programs. Charlotte, North Carolina

Brenner Children's Hospital Care Always perinatal and neonatal palliative care, Wake Forest Baptist Health. Contact: Christine Elizabeth Bishop MD. Winston-Salem, North Carolina

Duke Children's Hospital and Health Center prenatal, neonatal, and pediatric palliative care. Durham, North Carolina


Eva's Footprints perinatal bereavement support, Mountain Area Pregnancy Services. Contact: Julie Morris RN MA, director of grief care, (828) 252-1306. Asheville, North Carolina

Kids Path Perinatal Hospice, Hospice and Palliative Care of Greensboro, North Carolina


Levine Children’s Hospital Pediatric Advanced Care Team (PACT), Carolinas HealthCare System. Contact: Palliative care social worker Allie Shukraft MAT MSW LCSWA, (704) 446-2811. Charlotte, North Carolina

Monica's Hope, parent support sponsored by the Diocese of Raleigh and affiliated with Be Not Afraid. Contact: Anne or Gwyneth. Raleigh, North Carolina


Mountain Valley Hospice & Palliative Care perinatal hospice, Mount Airy, North Carolina


University of North Carolina Center for Maternal and Fetal Health Perinatal Palliative Care, Chapel Hill, North Carolina



NORTH DAKOTA


Essentia Health Caring Hearts Perinatal Program. Fargo, North Dakota



OHIO

Cincinnati Children's Hospital Medical Center StarShine Perinatal Hospice, Cincinnati, Ohio

Cleveland Clinic Fetal Care Center. Contact: Donna Patno CNM DNP, (866) 864-0430. Cleveland, Ohio

Hospice of the Western Reserve Perinatal Care Program and brochure. Cleveland, Ohio

Journey of Hope Perinatal Hospice, Miami Valley Women's Center. Contact: Nancy Jensen RN, (937) 298-9998, Dayton, Ohio

Maternal-Child/Pediatric Palliative Care (MACPAC) at Mercy Children's Hospital and Mercy St. Vincent. Contact: Angie Westenkirchner RN, maternal-fetal medicine high-risk patient navigator, (419) 251-8065. Toledo, Ohio

Miami Valley Hospital/Dayton Children's Hospital Fetal to Newborn Care Center, including perinatal hospice support. Dayton, Ohio

Nationwide Children's Hospital Homecare perinatal hospice care. Columbus, Ohio

Ohio Fetal Medicine Collaborative, a consortium of six hospitals (Dayton Children's, Mount Carmel, Nationwide Children's, Miami Valley, OhioHealth, and Ohio State University Wexler Medical Center), with services including perinatal palliative care.


Rainbow Babies & Children's Hospital Pediatric Palliative Care Center. Contact: Ann Marie Dragon RN BSN MBA, clinical coordinator, (216) 286-4215. Cleveland, Ohio

Sufficient Grace Ministries Perinatal Hospice and Bereavement Services, providing in-person and online peer-based support. Contact: Kelly Gerken, (419) 722-6978. Deshler, Ohio


The Toledo Hospital/Toledo Children's Hospital perinatal palliative care, ProMedica Health System. Contact: Social worker Kim Folk-Axe, (419) 291-5421, or Chaplain Julie Beitelschees, (419) 291-3656. Toledo, Ohio



OKLAHOMA

Be A Pal (Bereavement and Palliative Care) Committee at OU Medical Center, University of Oklahoma. Includes perinatal and neonatal support. Contact: Debbie Rice RN, (405) 271-8001, ext. 42085. Oklahoma City, Oklahoma

The SILAS Program, perinatal palliative care at Helmerich Women's Health Center, Hillcrest Healthcare System. Tulsa, Oklahoma


OREGON


Bridges Palliative Care, including perinatal support, at Doernbecher Children’s Hospital at Oregon Health & Science University. Contact: Pediatric nurse practitioner Kathy Perko RN MS, (503) 418-5172. Portland, Oregon



PENNSYLVANIA

Children's Hospital of Philadelphia Perinatal Palliative Care at the Center for Fetal Diagnosis and Treatment. Contact: Perinatal palliative care and bereavement, (800) 468-8376. Philadelphia, Pennsylvania


Delaware County Memorial Hospital Perinatal Palliative Care Program. Contact: Perinatal Bereavement Services at (610) 394-4798. Drexel Hill, Pennsylvania


Homeland Hospice Pediatric Care, including perinatal support. Contact: Pediatric hospice program director Caroline McCardell RN, (717) 221-7890. Harrisburg, Pennsylvania


Janet Weis Children’s Hospital’s Perinatal Palliative Care at the Center for Prenatal Pediatrics, Geisinger Health System. Contact: Perinatal palliative care coordinator and clinical care specialist Mindy Lewis MSW LSW, (570) 214-4621. Danville, Pennsylvania


Jefferson Health CORE Perinatal Palliative Care Team. Contact: Coordinator Jane M. Cavanaugh RN, (215) 955-8346. Philadelphia, Pennsylvania

Lancaster General Health Perinatal Palliative Care. Contact: Perinatal palliative care coordinator Sharon Kauffman MSN RN CPLC, (717) 544-3418. Lancaster, Pennsylvania

Lily's Gift, a collaboration of the Office for Persons with Disabilities, the Office of Life and Family, and Catholic Social Services of the Archdiocese of Philadelphia. Contact: Sr. Kathleen Schipani, (215) 587-3530 or Kathleen Bevenour, (215) 945-2550. Philadelphia, Pennsylvania

St. Christopher's Hospital for Children perinatal palliative care support. Contact: Palliative Care Program (215) 427-8352 or the Regional Fetal Evaluation Center (215) 427-5521. Philadelphia, Pennsylvania

Tender Hope Perinatal Hospice, a division of SUN Home Health and Hospice, (888) 478-6227. Northumberland, Pennsylvania


The Promise: Pittsburgh's Perinatal Palliative Care Initiative, a program of Catholic Palliative Services, a division of Catholic Hospice. Contact: Perinatal palliative care coordinator Lori Heil, (866) 933-6221. Pittsburgh, Pennsylvania


University of Pittsburgh Perinatal Palliative Care Program at Children’s Hospital of Pittsburgh and Magee Women’s Hospital, a comprehensive program composed of a board-certified hospice and palliative care physician, a physician assistant, a manager with extensive hospice experience, and a bereavement coordinator. Care is coordinated with specialists in maternal-fetal medicine, neonatology, and genetics at the Fetal Diagnostic Treatment Center at UPMC. Families are not required to deliver at a UPMC facility in order to receive care. Contact: Program manager Carol May, (412) 692-3234.

WellSpan York Hospital Loving with Grace perinatal palliative care program. Contact: Program coordinators Amanda Delridge RN and Jill Royer BSN, (717) 851-4730. York, Pennsylvania


West Penn Hospital perinatal hospice support. Allegheny Health Network Maternal-Fetal Medicine Program. Pittsburgh, Pennsylvania


You Are Not Alone, parent support sponsored by the Diocese of Allentown and affiliated with Be Not Afraid. Contact: Sr. Janice Marie Johnson RSM, (610) 289-8900 x245 or Teri Dakuginow, (610) 435-1541 x334. Allentown, Pennsylvania



RHODE ISLAND

My Child, My Gift, parent support sponsored by the Diocese of Providence and affiliated with Be Not Afraid. Providence, Rhode Island

Women & Infants' Hospital of Rhode Island Perinatal Palliative Care Program. Contact: Neonatologist Beatrice Lechner MD, (401) 274-1100. Providence, Rhode Island


SOUTH CAROLINA

COMPASS (Comprehensive Perinatal, Pediatric, and Adolescent Support Service) at Palmetto Health Children's Hospital. Contact: Nurse coordinator Debbie Kamowski RN BSN CHPPN, (803) 434-2249. Columbia, South Carolina


Medical University of South Carolina Children's Hospital Palliative Care. Contact: Palliative care program medical director Conrad Williams MD FAAP, (843) 792-6062. Charleston, South Carolina

Perinatal ComfortCare, providing support services guided by OB nurses experienced in perinatal bereavement. Also provides long-distance support. Contact: CEO and founder Tammy Tate RN, (864) 419-4519. Greenville, South Carolina



SOUTH DAKOTA

Avera McKennan Palliative Care Service, Avera McKennan Hospital. Contact: Medical director Joann Bennett DO FACOI, Nancy Terveen NP (605) 322-8993; Michele Snyders MSW, Anna Perry MSW, (605) 322-8273. Sioux Falls, South Dakota

Sanford Children's Hospital Pediatric Palliative Care. Contact: Lawrence Fenton MD or Pam Koepsell RN, (605) 312-1062. Sioux Falls, South Dakota


TENNESSEE

Alive Hospice Monarchs perinatal program, Nashville, Tennessee


Hospice of Chattanooga Perinatal Care Program, Chattanooga, Tennessee

Jackson-Madison County General Hospital Women's Center perinatal palliative care support. Contact: Perinatal bereavement coordinator LeighAnn Sutton LBSW, (731) 541-6246. Jackson, Tennessee

Monroe Carell Jr. Children's Hospital at Vanderbilt Prenatal Care Services, through the Fetal Center. Contact: Genetic counselor Martha Dudek MS CGS or palliative care coordinator Tisha Longo LMSW, (615) 343-4673. Nashville, Tennessee

St. Thomas Midtown Hospital perinatal hospice program. Nashville, Tennessee



TEXAS

Cook Children's Medical Center. Contact: NICU director Barbara Greer, palliative care medical director Todd Pearson MD, or neonatologist and palliative care specialist Terri Weinman MD, (682) 885-4285. Fort Worth, Texas

Community Hospice of Texas Little Doves Pediatric Hospice Program, including prenatal support. Dallas-Fort Worth and Waco, Texas


Houston Hospice Butterfly Program perinatal hospice, Houston, Texas


Hospice of Wichita Falls, providing pediatric and perinatal hospice & palliative care across a 12-county area. Contact: Medical director J. Robert Parkey MD MTS HMDC or chief of clinical services Shelby Crabtree RN, (940) 691-0982. Wichita Falls, Texas


Journey of Hope/Viaje de Esperanza, University of Texas Health Science Center at San Antonio. Contact: Peggy Humm MSN RN, (210) 843-4719. San Antonio, Texas

Kinder Hope Perinatal Hospice Care, Hope Hospice, (830) 625-7525 or (800) 499-7501. New Braunfels, Texas

Love's Legacy Perinatal Hospice Support Care, Next Step Women's Center. Contact:  Bethann Richard RN, (817) 295-4101 or (817) 932-5488. Burleson and Fort Worth, Texas

Medical City Women's and Children's Hospital Advanced Maternal and Newborn Institute palliative care. Contact: Michelle Jones RN, (972) 566-8585. Dallas, Texas

Providence Children's Hospital/Sierra Providence La Mariposa Hospice Treasured Moments perinatal palliative care. Contact: (915) 577-7870. El Paso, Texas

Texas Fetal Center, University of Texas Health Science Center, Children's Memorial Hermann Hospital. Contact: Karen Moise RN, Fetal Center clinical coordinator, (832) 325-7288; Gina Leigh Jones RN, coordinator of bereavement and supportive care services, (713) 704-5068; or Kim Cole RNC NNP-BC or Kristie Cullum RN BSN CHPN, (713) 704-0495. Houston, Texas

Texas Health Harris Methodist Fort Worth Hospital weeCare perinatal and neonatal palliative care program. Contact: Medical director Terri Weinman MD, (817) 250-7815 or email. Fort Worth, Texas

Pediatric and Perinatal/Neonatal Palliative Program of the Permian Basin, West Texas Maternal Fetal Medicine Center. Contact: Jamie Chase MS CGC. Odessa, Texas

University of Texas Medical Branch Perinatal Hospice and Palliative Care. Galveston, Texas

VITAS Innovative Hospice Care, including perinatal support. Contact: Child life specialist Destani W. Erwin, (817) 870-7070. Fort Worth, Texas
 


UTAH

Angel Watch, Intermountain Health Care. Contact: (801) 698-4486. Salt Lake City, Utah


Primary Children's Medical Center/University of Utah Health Care Rainbow Kids Pediatric Palliative Care Program, including prenatal support. Contact: Nurse coordinator Beth Nordfors RN, (801) 662-3770. Salt Lake City, Utah  



VIRGINIA

Edmarc Hospice for Children Perinatal Program. Contact: (757) 967-9251. Portsmouth, Virginia

Embracing Grace parent-to-parent peer support. Richmond, Virginia


Inova Fairfax Hospital Perinatal Concerns Program. Contact: Kelly Gallo RN, (703) 776-6371. Falls Church, Virginia

Mary Washington Hospital Family Birth Place perinatal bereavement services. Contact: Perinatal bereavement coordinator Tammy Ruiz Ziegler RN CPLC, (540) 741-3268. See also her video about perinatal hospice, translated into multiple languages. Fredericksburg, Virginia

St. Francis Medical Center perinatal palliative care program. Contact: Perinatal bereavement coordinator Michelle Henderson RNC-OB, CCL, (804) 594-3250, (804) 594-3291. Midlothian, Virginia


St. Mary's Hospital Noah's Children perinatal care, St. Mary's Hospital. Richmond, Virginia


Tepeyac Family Center Kristin Anderson Perinatal Hospice Program, (703) 273-9440, Fairfax, Virginia



WASHINGTON

Lavender Tree Perinatal Hospice Support, Care Net of Pierce County, (253) 770-8697 or email. Puyallup, Washington


Providence Hospice of Seattle Stepping Stones Perinatal Program., Providence Health & Services. Seattle, Washington


Sacred Heart Women's Health Center Forget-Me-Not Perinatal Palliative Care, Providence Health & Services. Spokane, Washington


WEST VIRGINIA

Byron C. Calhoun MD FACOG FACS MBA, professor and vice chair, Maternal-Fetal Medicine Division, West Virginia University-Charleston and Charleston Area Medical Center, (304) 388-1599. Charleston, West Virginia

West Virginia University Children's Hospital Pediatric Supportive Care Team, including perinatal consults. Contact: Pediatric palliative care physician Joshua Dower MD. Morgantown, West Virginia



WISCONSIN

Affinity Health System Perinatal CARE Program. Contact: Amy Farley MSW, (920) 738-2094. Appleton, Wisconsin


Children's Hospital of Wisconsin Fetal Concerns Program palliative care. Milwaukee, Wisconsin

Gundersen Health System perinatal palliative care. Contact: Bereavement specialist Marie A. Walter MS RN C-EFM CPLC, (608) 775-3796 or (800) 362-9567 ext. 53796. La Crosse, Wisconsin

UnityPoint Health Meriter Hospital Perinatal Palliative Care. Madison, Wisconsin

St. Vincent Hospital pregnancy and infant loss support. Contact: Perinatal palliative care and bereavement coordinators Lana Reinke RN CPLC (NICU) or genetic counselor Theresa Shuck MS MA CGC CPLC. Green Bay, Wisconsin




                                                                     INTERNATIONAL                                             



ARGENTINA


Hospital Nacional Prof. Alejandro Posadas pediatric palliative care, including prenatal support. Contact: Pediatric palliative care director Rut J. Kiman MD. Buenos Aires, Argentina


AUSTRALIA


Children's Health Queensland Paediatric Palliative Care, including antenatal referrals, Lady Cilento Children's Hospital. South Brisbane, Queensland, Australia


Perinatal Palliative Care, sponsored by Catholic Health Australia, Mater Health, Mercy Health, and Calvary Health Care, with 13 hospital and clinic locations in Adelaide, Brisbane, Canberra, Hobart, Launceston, Mackay, Melbourne, North Queensland, and Wagga Wagga.


Women's and Children's Hospital paediatric palliative care. Contact: Maternal-Fetal Medicine coordinator or pediatric palliative care team at 08 8161 7000. North Adelaide, Australia


CANADA

Alberta Children's Hospital Children's Hospice and Palliative Care Service, also accepting referrals for perinatal hospice. Contact: Clinical nurse specialist Kathryn da Silva, (403) 955-5460. Calgary, Alberta

Canuck Place Children’s Hospice offers comprehensive pediatric hospice and palliative care, including perinatal support. Email or phone: (604) 731-4847. Vancouver, British Columbia  


Capital Health Pediatric Palliative Care Program, Child Health Program. Contact: (780) 407-7210 (physician) or (780) 407-7652 (nurse coordinator), or email Dawn Davies MD or Tara Wren. Edmonton, Alberta

IWK Health Centre Pediatric Palliative Care Service, IWK Health Centre. Contact: (902) 470-7262 or email Marie-Claude Grégoire MD or clinical nurse specialist Grace MacConnell. Halifax, Nova Scotia


London Health Sciences Centre Perinatal Hospice. Contact: Genetic counsellor Stephanie Ho, Medical Genetics Program, (519) 685-8500, ext. 52428. London, Ontario


Montreal Children's Hospital/McGill University Health Centre Pediatric Palliative Care Program, including antenatal consultations and bereavement followup. Montreal, Quebec


Roger's House pediatric hospice, offering perinatal hospice in collaboration with the Children’s Hospital of Eastern Ontario Palliative Care Outreach Program. Ottawa, Ontario


University of Toronto Hospital for Sick Children Paediatric Advanced Care Team, including antenatal support. Families are also assisted by the Pathways Grief Support Program. Contact: Palliative care and bereavement coordinator Lori Ives-Baine RN, (416) 813-6782. Toronto, Ontario


Winnipeg Regional Health Authority Palliative Care Program, including perinatal consultation and support. Contact: (204) 237-2400. Winnipeg, Manitoba


CHILE

Acompañar-es Perinatal Palliative Care, Catholic University Hospital. Contact: Dr. Jorge Neira, Department of Gynecology and Obstetrics UC, (56) (2) 23548077 or email. Santiago, Chile

 
CZECH REPUBLIC

Perinatální hospicová a paliativní péče, resources and list of medical professionals available to help in Prague, Brno, Plzeň and other cities in the Czech Republic
 

ENGLAND

Chelsea and Westminster Hospital perinatal palliative care. Contact: Alexandra Mancini, lead nurse for Complex, Palliative and Bereavement Care, tel: 07805 739785. London, England

Forget Me Not Children's Hospice Neonatal Inreach Project, including antenatal support for families whose baby has been diagnosed with a life-limiting anomaly; Russell House, tel. 01484 411042. Huddersfield, West Yorkshire, England


Martin House antenatal and neonatal support. Leeds, England


The Maypole Project offers emotional psychosocial support, including prenatal support, integrated with children's hospices and children's hospitals in southeast London and Kent to ensure a holistic package of care.

Together for Short Lives, a U.K. charity for children with life-threatening and life-limiting conditions, also provides prenatal support and information.


See also the online perinatal palliative care training available from the Royal College of Midwives.



FRANCE

Department of Neonatology, University Hospital North; Assistance Publique-Hôpitaux de Marseille. Contact: Barthélémy Tosello MD. Marseille, France

Soin Palliatif Centre National De Ressources Accompagner son bébé en fin de vie: les soins palliatifs autour de la naissance. Paris, France

Soins Palliatifs et Accompagnement en Maternité, SPAMA (Palliative Care and Support in Pregnancy). See also the book Un enfant pour l'éternité by Isabelle de Mézerac, also available in Spanish and Portuguese


GERMANY

Parents Helping Parents: Continuing a pregnancy after a prenatal diagnosis. Forthcoming book: Weitertragen: Wege nach pränataler Diagnose (Further: After prenatal diagnosis). See also palliative-geburt.info. Bruck, Germany


University Hospital Charité Berlin neonatal palliative care, including prenatal counseling and support. Berlin, Germany


HUNGARY


Perinatal Intensive Center, 2nd Department of Obstetrics and Gynecology, Semmelweis University, Contact: Eva Czemmel or István Kocsis MD PhD DEAA, head of neonatal services, tel: +36-1-3137856. Budapest, Hungary



IRELAND

Coombe Women & Infants University Hospital antenatal support. Contact: Director of fetal medicine Carmen Regan MD or Brid Shine, clinical midwife specialist in bereavement and mental health, 00 353 (1) 408 5200. Dublin, Ireland

Perinatal bereavement support at Cork University Maternity Hospital perinatal bereavement support. Contact: Hospital Chaplain Daniel Nuzum, 00 353 (21) 492 0500. Wilton, Cork, Ireland

For parent-to-parent support: A Little Lifetime Foundation, a Dublin organization providing support to bereaved parents including those with a prenatal diagnosis, and One Day More and Every Life Counts, for those continuing a pregnancy after a prenatal diagnosis


ITALY


Gemelli Hospital center for perinatal palliative care. Contact: Perinatal hospice director Giuseppe Noia MD. Rome, Italy


La Quercia Millenaria c/o CAFT Fiano Romano. Contact: Sabrina Pietrangeli Paluzzi, tel. 0765-451160, cell 3208010942. Rome, Italy

La Quercia Millenaria perinatal hospice at Santa Chiara Hospital, University of Pisa. Contact: Bianca De Pascalis, cell 3470445933. Pisa, Italy


La Quercia Millenaria c/o Salesi Hospital. Contact: Fernando and Valentina Taborro, tel. 335-7691233. Ancona, Italy


La Quercia Millenaria c/o Azienda Ospedaliera Carlo Poma. Contact: Samuela Boni, tel. +393479780079, or Alberta Gavioli MD, tel. +393357070703. Mantova, Italy

Percorso Giacomo (James' Path) perinatal hospice, Sant'Orsola Hospital, University of Bologna. Contact: Neonatologist Chiara Locatelli MD or by email . Bologna, Italy


Perinatal palliative care group, Departments of Neonatology and Obstetrics, University of Milano-Bicocca; San Gerardo Hospital – MBBM Foundation. Contact: Giuseppe Paterlini MD, phone: +39392339197. Monza, Italy

Villa Betania Hospital Perinatal Hospice, providing prenatal and neonatal support for families whose baby has life-threatening and life-limiting conditions. Contact: Annalisa Agangi MD, Department of Obstetrics; or Franca Sarracino RN, Department of Neonatology, tel 3389832624. Naples, Italy

See also the book Aspettando Gabriel by Amy Kuebelbeck (Edizioni San Paolo), available from Amazon.it.


MEXICO

ECA—Grupo De Apoyo Ante Pérdidas Gestacionales Y De La Niñez Temprana. Contact: General coordinator Erika Ortiz, tel. 5557023915 within Mexico or mobile 044 55 2069 9935. Mexico City, Mexico


Hospital Civil de Guadalajara Juan I. Menchaca. Contact: Yuriko Nakashima MD, tel. +52(33) 36183962, ext. 1307. Guadalajara, Jalisco, Mexico


NEW ZEALAND

Starship Children's Hospital pediatric palliative care team. Auckland, New Zealand

The Therese Programme, providing perinatal hospice information and support after an adverse prenatal diagnosis; a project of Family Life International NZ. Auckland, Poirirua, and Dunedin, New Zealand


NICARAGUA

Centro de Coordinación Para El Acompañimiento de Madres con un Hijo/a Terminal, Associación de Médicos Catolicos, Humanae Vitae. Contact: Walter Zamora Palma MD, Rafael Diaz Salazar MD, Juan Herrera Salazar MD, tel. 2270 3359, 2278 1169. Managua, Nicaragua



NORWAY

Hospice i mors liv —A virtual "hospice in the womb" that offers guidance and peer support, throughout the pregnancy and after. See also the e-book Evy Kristine: Retten til et annerledesbarn. Contact: Siri Fuglem Berg MD PhD, tel. +47 90 70 10 11. Gjovik, Norway

Hospice i mors liv (hospice in the womb), "Yes for palliative units and care for children in Norway," an advocacy organization. Kristiansand, Norway


PARAGUAY

Fundación Juan Pablito , "la vida compatible con el amor." Asunción, Paraguay


POLAND

Gajusz Foundation pediatric and perinatal hospice care. Lodz, Poland


Hospicjum dla Dzieci Dolnego Śląska, including perinatal hospice care. Wroclaw, Poland

Hospicyjna Opieka Perinatalna (Perinatal Hospice Care), Fr. Dutkiewicz Hospice, Hospice Foundation. Gdansk, Poland


Krakowskie Hospicjum dla Dzieci imienia księdza Józefa Tischnera, including perinatal hospice care. Krakow, Poland

Śląskie Hospicjum Perinatalne, Katowice, Poland


Warsaw Perinatal Hospice  and Perinatal Ultrasound Clinic. Warsaw Poland.

Wroclaw Hospice for Children Hospicjum Perinatalne. Wroclaw, Poland



SCOTLAND

Perinatal palliative care pilot project, National Health Service Lothian. Contact: Neonatologist Edile Murdoch MD. Edinburgh, Scotland


SOUTH AFRICA

Sunflower Children's Hospice neonatal and palliative care service. Bloemfontein, South Africa


SPAIN

HSJD Hospice Perinatal Program, Hospital Sant Joan de Déu. Contact: Ana Martín Ancel MD, Department of Neonatology. Barcelona, Spain



UKRAINE

Слід Життя (Imprint of Life), a nonprofit providing perinatal palliative care and support, including parent-to-parent support. Contact: Geneticist and consultant in clinical bioethics Justina Olha Golubets, tel. +380972819539, or by e-mail or Facebook. Lviv, Ukraine



WALES

Cardiff Children's Hospital Paediatric Palliative Care Network, including perinatal support. Contact: Linda Baker, tel: +44 29 2074 3373. Cardiff, Wales




                 If your organization provides formal or informal perinatal hospice support
            and you would like to be added to this list, please contact info@perinatalhospice.org.

As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. In too many places, the ability to diagnose has raced ahead of the ability to care for these families and their babies. But in a beautiful and practical response, nearly 300 pioneering hospitals, hospices, and community-based organizations in the U.S. and around the world are now providing perinatal hospice & palliative care support for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.

A perinatal hospice approach walks with these families on their journey through pregnancy, birth, and death, honoring the baby as well as the baby's family. Perinatal hospice is not a place; it is a way of caring for the pregnant mother, the baby, the father, and all involved with dignity and compassion and love. It can easily be incorporated into standard pregnancy and birth care just about anywhere. Even in areas without a formal program, parents can create a loving experience for themselves and their baby, and health professionals and family and friends can offer support in the spirit of hospice (see A Gift of Time and the resources for parents and caregivers on this site).

PERINATAL HOSPICE & PALLIATIVE CARE PROGRAMS AND SUPPORT

PERINATAL HOSPICE & PALLIATIVE CARE

UNITED STATES

Programs and groups listed below may vary in their scope of support and services. Most of the programs listed below are based in hospitals and are integrated into pregnancy and birth care; some are hospice-based; and a few are faith-based or independent. This list, begun in 2006, is compiled free of charge and is not necessarily exhaustive; if you need this support and your hospital is not listed, your hospital might already be providing this care or be willing to learn with you. If your organization provides formal or informal perinatal hospice & palliative care support and you would like to be added to this list, contact info@perinatalhospice.org.