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Publications by Amy Kuebelbeck

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Amy Kuebelbeck has written a number of articles to help explain perinatal hospice & palliative care to health professionals as well as the public, including chapters in Handbook of Perinatal and Neonatal Palliative Care (Springer, 2020), Perinatal Palliative Care: A Clinical Guide (Springer, 2020), and Neonatal Palliative Care for Nurses (Springer, 2020). She regularly shares perinatal hospice news with several thousand followers on Facebook and Twitter, and she also has been quoted by media including the New York Times and MSNBC.com in stories about perinatal hospice and related issues.

Kuebelbeck A. A Gift of Time: Continuing a pregnancy when a baby's life is expected to be brief. Children's Project on Palliative/Hospice Services (ChiPPS) E-Journal, a project of the National Hospice and Palliative Care Organization. February 2013.

Kuebelbeck A. A Gift of Time: Continuing a pregnancy when a baby's life is expected to be brief. National Association of Perinatal Social Workers NAPSW Forum, Spring 2013, Vol. 33, No. 2.


Kuebelbeck A. Building and sustaining relationships during pregnancy. In: Limbo R, Wool C, Carter B, eds. Handbook of Perinatal and Neonatal Palliative Care. Springer; 2019.

Kuebelbeck A. "Incompatible with life," compatible with love: Perinatal hospice and palliative care. Pallimed, a Hospice & Palliative Medicine Blog. Oct. 17, 2016.

 

Kuebelbeck A. Perinatal hospice: A holistic approach for when death comes at the beginning of life. The Forum, newsletter of the Association for Death Education and Counseling. 2005 Jan/Feb/Mar;31(1):6-7.

Kuebelbeck A. Perinatal palliative care: Two decades of exponential growth. Children's Project on Palliative/Hospice Services (ChiPPS) E-Journal, in collaboration with the National Hospice and Palliative Care Organization, Issue 49. November 2017.

 

Kuebelbeck A. Testimonianza, "Yes to Life! Prendersi cura del prezioso dono della vita nella fragilità," e-book compilation of presentations at conference in Rome, May 23-25, 2019. Libreria Editrice Vaticana, May 2020, pp. 175-176.

 

Kuebelbeck A. Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life. Loyola Press, 2003.

Kuebelbeck A. Waiting with Gabriel. Current Problems in Pediatric and Adolescent Health. 2011 April;41(4):113-4.


Kuebelbeck A. “Yes to Life” and the Expansion of Perinatal Hospice. Perspectives in Biology and Medicine. 2020;63(3):526-531. 

Kuebelbeck A, Carter B. Exploring the concept of palliative care for babies and their families. In: Mancini A, Price J, Kerr-Elliott T, eds. Neonatal Palliative Care for Nurses. Springer; 2020:9-20.

Kuebelbeck A., Davis DL. A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief. Johns Hopkins University Press, 2011.

 

Kuebelbeck A, Denney-Koelsch E. Parental experiences and needs after a life-limiting prenatal diagnosis. In: Denney-Koelsch E, Côté-Arsenault D, eds. Perinatal Palliative Care: A Clinical Guide. Springer; 2020:57-76.

 

American Academy of Nursing policy brief, Perinatal palliative care as an essential element of childbearing choices. Limbo R, Brandon D, Côté-Arsenault D, Kavanaugh K, Kuebelbeck A, Wool C. Nursing Outlook, January/February 2017(65)1:123–125.

Limbo R, Brandon D, Côté-Arsenault D, Kavanaugh K, Kuebelbeck A, Wool C. American Academy of Nursing policy brief, Perinatal palliative care as an essential element of childbearing choices. Nursing Outlook, January/February 2017(65)1:123–125.

Ziegler TR, Kuebelbeck A. Close to Home: Perinatal Palliative Care in a Community Hospital. Advances in Neonatal Care. May 2020.

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