Resources for Parents


Now I Lay Me Down to Sleep, an international network of trained photographers who provide free remembrance photography for parents suffering the loss of a baby. (See also this article about perinatal hospice, written by Amy Kuebelbeck for their 10th anniversary commemorative magazine)

CaringBridge, free websites to keep family and friends informed about your baby


A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief, a gentle and practical guide for parents who are — or are considering — continuing their pregnancy knowing that their baby's life will be brief


Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life, a memoir about prenatal diagnosis, continuing a pregnancy, and embracing a baby's life. (Read an excerpt here.) Also available in Italian



























































For information about birth plans and advance care plans for your baby, including links to sample birth plans, see the Birth Planning page on this site.



All That Love Can Do website and Facebook page, support for families who continue their pregnancies after a life-limiting prenatal diagnosis. Also see website for links to private Facebook groups for mothers, fathers, and grandparents


BabyCenter board: Carrying Pregnancy to Term Despite Poor or Fatal Prenatal Diagnosis  (public) Facebook group (private group moderated by editor of, a website based in Switzerland and available in 10 languages)


HLHS Comfort Care private Facebook group for parents continuing their pregnancies with babies diagnosed with hypoplastic left heart syndrome and planning to provide palliative care after birth


The Journey of Carrying to Term Despite a Fatal Diagnosis private Facebook group

Trisomy 18 Foundation Facebook group (private group for parents expecting a child with Trisomy 18, most of whom are continuing their pregnancies and are connecting to ask questions of other parents who also carried to term), moderated by the Trisomy 18 Foundation


Trisomy 18 Foundation online community, Carrying to Term (private)


Living with Trisomy 13 Facebook group (public)



Now I Lay Me Down to Sleep, international network of infant bereavement photographers


Remember My Baby (U.K.)


Heartfelt (Australia and New Zealand)

Todd Hochberg Touching Souls: Healing with Bereavement Photography (Chicago)



"Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life," by Amy Kuebelbeck (Loyola Press, Chicago, 2003

"A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief," by Amy Kuebelbeck and Deborah L. Davis, Ph.D. (Johns Hopkins University Press, Baltimore, 2011)

"Empty Cradle, Broken Heart: Surviving the Death of Your Baby," by Deborah L. Davis, Ph.D. (Fulcrum Publishing, Golden, Colorado, 2016) 


"Loving Samuel: Suffering, Dependence and the Calling of Love” by Aaron Cobb (Cascade Books, Eugene, Oregon, 2014)


“The Heart of Jesús Valentino: A Mother’s Story” by Emma Gilkison (Awa Press, Wellington, New Zealand, 2018)


“Perfectly Human: Nine Months with Cerian” by Sarah C. Williams (Plough Publishing House, Walden, New York, 2018)

"Carrying to Term: A Guide for Parents After a Devastating Prenatal Diagnosis," by Jane Lebak (Philangelus Press, 2017)


Antenatal Results and Choices (U.K.): Continuing a Pregnancy

Be Not Afraid 

Carrying to Term Pages


Count the Kicks (U.K.): Continuing a pregnancy following fatal or poor diagnosis

Every Life Counts (Ireland), perinatal hospice advocacy and information & support for parents  

HealthTalkOnline patient experiences about continuing a pregnancy, University of Oxford, England

Isaiah's Promise, parent-to-parent support

Joan's Reach, support, advocacy, and professional referrals

One Day More (Ireland), parent-to-parent support 


Perinatal ComfortCare

Prenatal Partners for Life, parent-to-parent support

Pietá ministry

Prenatal Diagnosis Support Australia

Rowan Tree Foundation Neonatal Death/Fatal Fetal Diagnosis (birth plans and many resources)

Sufficient Grace Ministries Perinatal Hospice and Bereavement Services

Waiting with Love




Anencephaly Information, available in 10 languages


HLHS Comfort Care, addressing the non-surgical option for babies with hypoplastic left heart syndrome. Also a private Facebook group for parents

Limb-Body Wall

MUMS National Parent-to-Parent Support Network

Poor Prenatal


Pregnant with multiples:  


Trisomy 18 and Trisomy 13:





Babyloss Family Advisors, providing birth plans and one-on-one support by parent advocates

Babies Remembered

Brief Encounters

Féileacáin, Stillbirth and Neonatal Death Association of Ireland

1st Breath stillbirth support

Hope After Loss

Infants Remembered in Silence

M.E.N.D. (Mommies Enduring Neonatal Death)

MISS Foundation

Pregnancy Loss Support Program, a service of the National Council of Jewish Women, New York

Return to Zero Center for Healing, Emmy-nominated movie about stillbirth, and related resources

SANDS Stillbirth and Neonatal Death Society, Australia

SANDS Stillbirth and Neonatal Death Society, England


SANDS Stillbirth and Neonatal Death Society, New Zealand

SHARE Pregnancy and Infant Loss Support, providing parent support and education since 1977

Stillbirthday, birth plans and many resources

Stillborn and Infant Loss Support

The Solace Foundation

Star Legacy Foundation stillbirth research and support

Sweet Pea Project resources for parents and a blanket-donation project for hospitals




Association of Organ Procurement Organizations (U.S.)

International Institute for the Advancement of Medicine, donation for research

Purposeful Gift, information about neonatal donation for transplant or research


The Cord Blood Center and informational site for parents

"Flash and His Gift," video depicting one family's experience, also available in Spanish

Mini-documentary "Amalya," about a family whose baby was diagnosed prenatally with anencephaly and was able to be a donor for research

"Newborn baby Teddy was UK's youngest-ever organ donor," BBC News, April 23, 2015.

A special note about anencephaly: A baby born alive with this condition still has some brain function and does not usually meet the criteria for brain death. (See this position statement from the Canadian Paediatric Society.)



Crossings: Caring for Our Own at Death—A Home Funeral and Green Burial Resource CenterInformation about caring for your baby's body and holding a vigil in your home


Planning a Precious Goodbye Booklet about planning a memorial service for your baby

National Home Funeral Alliance

Olivia Raine Foundation Financial assistance for funeral-related expenses for infants

"Providing after-death care at home when a baby dies," by Deborah L. Davis Ph.D., Psychology Today, March 3, 2014.

"Transporting your baby," information about bringing your baby's body home before burial or to a funeral home, from SANDS New Zealand

Trappist monks from New Melleray Abbey in Iowa build infant-sized caskets out of sustainable red oak harvested from the abbey's forest; infant caskets are provided free of charge as a ministry to families

When Your Baby Dies Information about bringing your baby's body home for a brief time with your family and/or holding a home funeral (a growing practice in the U.S. and a common practice in other countries)

The book A Gift of Time also includes parent stories about bringing their baby's body home before the funeral or holding a vigil and funeral at home.




Loss Doulas International, one-on-one support to families facing the loss of a baby in miscarriage, stillbirth, or early infant death. Includes a state-by-state listing.

Asheville Doula Services. Support from a certified birth and postpartum doula with specialized training in perinatal loss. Asheville, North Carolina


Beyond the Rain, doula support in Janesville, Wisconsin

Ethan's Hope: Anencephaly Care, offering bereavement doula support specializing in anencephaly in the Atlanta, Georgia area. Contact: Lauren Bishop, (770) 658-9968. 

Katje Sabin, Chicago, Illinois


Healing Grace Birth Support, offering bereavement doula support in the upstate and midlands areas of South Carolina


Mending Heart Bellies bereavement doula support, in the Philadelphia area (also in conjunction with Lily's Gift




Sample birth plans

Cuidados paliativos perinatales: Cuando es probable que la vida de vuestro hijo sea breve; Generalitat de Catalunya Departament de Salut

"En espera del nacimiento y del fallecimiento al saber que su bebé no podrá vivir" brochure from RTS Bereavement Services/Gundersen Health System



CaringBridge Free Web pages to keep family and friends informed about your baby.

Certificates of Birth Resulting in Stillbirth Legal documents available in some states for babies who are born still.

Faith's Lodge in Webster, Wisconsin. A peaceful wooded retreat for families who currently have a child with a serious illness or have suffered the recent loss of a child.

Nickolas' Gift Care packages and memory boxes provided free to families.

Spare Key Housing-grant assistance for families in Minnesota, North Dakota, South Dakota, and Wisconsin with a seriously ill or critically injured child.

Advice regarding lactation after a loss: journal article in Clinical Lactation; Mother Nurture lactation consultant; information from A Gift of Time.

(Note: Inclusion in this list is not a guarantee of the quality of these websites or their services and products; please make your own decisions about what is helpful to you.)