Perinatal Hospice & Palliative Care Programs and Support

As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. In too many places, the ability to diagnose has raced ahead of the ability to care for these families and their babies. But in a beautiful and practical response, more than 300 pioneering hospitals, hospices, and community-based organizations in the U.S. and around the world are now providing perinatal hospice & palliative care support for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.

A perinatal hospice approach walks with these families on their journey through pregnancy, birth, and death, honoring the baby as well as the baby's family. Perinatal hospice is not a place; it is a way of caring for the pregnant mother, the baby, the father, and all involved with dignity and compassion and love. It can easily be incorporated into standard pregnancy and birth care just about anywhere. Even in areas without a formal program, parents can create a loving experience for themselves and their baby, and health professionals and family and friends can offer support in the spirit of hospice (see A Gift of Time and the resources for parents and caregivers on this site).

Programs and groups listed below may vary in their scope of support and services. Most of the programs listed below are based in hospitals and are integrated into pregnancy and birth care; some are hospice-based; and a few are faith-based or independent. This list, begun in 2006, is compiled free of charge and is not necessarily exhaustive; if you need this support and your hospital is not listed, your hospital might already be providing this care or be willing to learn with you. If your organization provides formal or informal perinatal hospice & palliative care support and you would like to be added to this list, please contact the editor of this site.

 

UNITED STATES

ALABAMA

Perinatal Hospice and Palliative Care at Hospice Family Care, in affiliation with Huntsville Hospital. Contact: Kristina Johnson RN, (256) 650-1212. Huntsville, Alabama


ALASKA

Fairbanks Memorial Hospital perinatal bereavement program. Contact: (907) 458-3014. Fairbanks, Alaska

Hospice of Anchorage, providing support to parents before and after birth as well as coordination with medical providers. Contact: Bereavement services coordinator Lisa Fleischer, (907) 561-5322. Anchorage, Alaska

Providence Medical Group perinatal palliative care. Contact: Kelsey Terland MD, (907) 212-7997. Anchorage, Alaska



ARKANSAS

Arkansas Fetal Diagnosis and Management, a collaborative program of the University of Arkansas for Medical Sciences and Arkansas Children's Hospital. Contact: Shannon Barringer (501) 296-1745 ext. 1415; Sara Peeples MD, (501) 526-3570; or Misty White, (501) 251-5996. Little Rock, Arkansas

 

Circle of Life Hospice Perinatal Transitions in Care Program. Springdale and Bentonville, Arkansas

 

St. Vincent Health System Journey perinatal bereavement program, including perinatal hospice support. See list of services and video. Contact: RTS bereavement coordinator Lynette Spruell LPN. Little Rock, Arkansas


ARIZONA

Babies Remembered perinatal palliative care and baby loss family support, a community-based organization offering support for families in the Tucson area as well as long distance. Contact: President and co-founder Sherokee Ilse, (952) 201-8667 or visit the list of independent advisors and doulas in other states. Tucson, Arizona

Dignity Health Chandler Regional and Mercy Gilbert Medical Center Heaven's Hummingbirds perinatal bereavement support, including prenatal support. Contact: Perinatal bereavement coordinator Lori Remley, (480) 728-7423. Gilbert, Arizona


EMBRACE Palliative Care Foundation. Contact: Berdette Carrasco RNC or Dana Southworth LMSW, (623) 330-4963 or email.


Hospice of the Valley Pediatric Care, including perinatal hospice. Phoenix, Arizona

MISS Perinatal Palliative CARES Program. Contact: (602) 279-MISS (6477) or (888) 455-MISS (6477)

 

Perinatal LOSS Palliative Care Program at Northern Arizona Healthcare (Flagstaff Medical Center & Verde Valley Medical Center). Contact: Perinatal Educator Lynn Harris RN BSN, (928) 214-3997.  Flagstaff, Arizona

 


CALIFORNIA

Angel Babies/Bebitos Angelitos of Hinds Hospice, Fresno and Merced, California

 

Community Hospice Gabriel's Friends pediatric hospice, including perinatal support. Modesto, California

 

Elizabeth Hospice Pediatric and Perinatal Hospice Care, in connection with the affiliated Center for Compassionate Care, which provides grief counseling and support. Contact: Center for Compassionate Care Director Lizabeth Sumner RN BSN, (760) 737-2050. Escondido, California

 

George Mark Children's House, including perinatal palliative care consults. San Leandro, California

 

Journey to Remember, a Forever Footprints perinatal comfort care program. Contact: Amanda Balderrama RN BSN, (800) 714-9320. (See their video.) Riverside/San Bernardino/Ontario, California

Loma Linda University Children’s Hospital Maternal Fetal Medicine Clinic, including perinatal palliative care. Contact: Perinatal palliative care coordinator Katherine Wall RN BSN MEd. Loma Linda, California

 

Perinatal Hospice Services, Life Choices Pregnancy Clinic of the Ojai Valley. Ojai, California

 

Rady Children's Hospital Perinatal Hospice Care. Contact: Krishelle Marc-Aurele MD, board-certified in neonatology and hospice & palliative medicine, (619) 543-3759. San Diego, California

St. Joseph Health System Home Health Perinatal Comfort Care. Contact: Debra Bolton BSN RNC CPLC at (714) 712-9559. Co-operated with St. Joseph Hospital Maternity Perinatal Palliative Care. Orange, California

 

St. Joseph Health System Mission Hospital Maternity Center Perinatal Hospice Care. Mission Viejo and Laguna Beach, California

Scripps Health Perinatal Hospice Care, with hospital locations in La Jolla, Chula Vista, Encinitas, and San Diego, California

TrinityCare Hospice TrinityKids Care. Contact Jamie Andrews, (310) 543-3400. Los Angeles, California

 

University of California Irvine Health Paloma Comfort Care. Orange, California

 

University of California San Francisco Benioff Children's Hospital Integrated Pediatric Pain & Palliative Care (IP3). Contact: Palliative care nurse practitioner Maggie Root PNP or perinatal palliative care coordinator and grief/loss counselor Summer Segal MS LCGC, (415) 353-1328. San Francisco, California

 

University of Southern California Keck School of Medicine Institute for Maternal Fetal Health perinatal hospice & palliative care. Los Angeles, California

 


COLORADO
 

Bella Natural Women's Care & Family Wellness, an OB/GYN and family clinic that also provides perinatal hospice support. Englewood, Colorado


Hospice del Valle, including prenatal support. Contact: Social worker and bereavement counselor Mary Jane Cisneros, (719) 589-9019. Alamosa, Colorado

String of Pearls, experienced OB nurses providing in-person perinatal hospice support in the Denver area and long-distance support to families nationwide. Contact: Executive director Laura Huene BSN RN CPLC. Littleton, Colorado

 

 

CONNECTICUT

Perinatal Hospice Program, Regional Hospice and Home Care of Western Connecticut. Contact: Coordinator Christine Mastropietro RN, (203) 702-7400. Danbury, Connecticut

 


DELAWARE
 

Delaware Hospice Katybug Pediatric Program, including support before and after birth. Contact: Director of admissions Erica Galbreath, (302) 478-5707. Serving families throughout Delaware and southeastern Pennsylvania.

IMPACT (Infant, Maternal, Pediatric Advanced Care Team) perinatal palliative care, Christiana Care Health Systems. Contact: Office of Neonatology, (302) 733-2410. Newark, Delaware


FLORIDA

AMEND (Aiding a Mother/Father Experiencing Neonatal & Infant Death), in collaboration with the bereavement program at Florida Hospital Tampa. Contact: AMEND program director Karen Frazier RN, (813) 631-9519. Tampa, Florida

Cherishing the Journey, Inc. Perinatal palliative care and infant loss support, memory boxes, and resources for siblings. Contact: Jennifer Harden, (321) 750-8354. Based in Melbourne, Florida, and serving surrounding counties

Community PedsCare perinatal program, a program of Community Hospice of Northeast Florida in collaboration with Wolfson Children's Hospital, Nemours Children's Clinic and the University of Florida. Contact: Director Terry Eason, (904) 407-6302, Jacksonville, Florida

 

Hope Kids Care, a program of Hope HealthCare Services. Contact: Malia Rardin, (239) 482-4673. Serving southwest Florida, based in Fort Myers, Florida

Perinatal Comfort Care of Tampa. Contact: Kathy DeSanto RN, (727) 401-5383. Tampa, Florida


Suncoast Hospice perinatal loss program. Contact: Julie Douglass, (727) 523-2425. Clearwater, Florida

The Mending Tree at Circle of Love Center, Chapters Health System. Contact: Jacqueline Warner Garman, LCSW, ACHP-SW, (813) 357-5671. Tampa, Florida

 

Winnie Palmer Hospital for Women and Babies perinatal palliative care, in conjunction with Arnold Palmer Medical Center and Arnold Palmer Hospital for Children. Contact: Taylor Livingston, nurse practitioner for pediatric palliataive care, (321) 841-2245. Orlando, Florida


GEORGIA

Augusta University Department of Obstetrics and Gynecology maternal-fetal medicine specialists fetal hospice. Augusta, Georgia

 

Hospice Atlanta Visiting Nurse Health System Pediatric Hospice Program, including care before birth. (404) 869-3000. Atlanta, Georgia

Hospice of Northeast Georgia Medical Center perinatal program, (770) 533-8888. Gainesville, Georgia

H.E.A.R.T.strings Perinatal Palliative Care, Northside Hospital Perinatal Loss Office, Atlanta, Georgia

Sound Journeys Perinatal Hospice. Columbus, Georgia

WellStar Health System Journey Through Bereavement Perinatal Palliative Care. Contact: Roxanne Graham, 770-793-8093. Atlanta, Georgia

 


HAWAII

 

Hospice Hawaii perinatal program. Contact: (808) 924-9255. Honolulu, Hawaii

Perinatal Hospice of Hawai'i. Contact: Maria LaFond RN, (406) 465-3265. Honolulu, Hawaii


IDAHO

Butterfly's Embrace, a perinatal palliative care service of St. Luke's Health System labor and delivery unit. Contact: 
Leslie Gunnerson, (208) 381-1807. Boise, Idaho

Daniel's Gift supportive counseling services, St. Luke's Health System Fetal Medicine Program. Contact: Coordinator Jacque Brown RN, (208) 410-9174. Twin Falls, Idaho

 

Saint Alphonsus Regional Medical Center Maternal-Fetal Medicine. Contact: Perinatal bereavement coordinator Christina Babin, (208) 367-7488. Boise, Idaho

 


ILLINOIS

A Bella Baby OB/GYN perinatal hospice care. Contact: Anthony J. Caruso MD MPH, (630) 810-9658. Downers Grove, Illinois

 

Advocate Lutheran General Hospital Perinatal Palliative Care Program. Contact: Palliative care coordinator Kathie Kobler MS RN, (847) 723-7911. Park Ridge, Illinois

BJC Hospice perinatal hospice care, Alton, Illinois (see also listings in Missouri)

Carle Hospital Circle of Care Perinatal Bereavement Program. Contact MaryLou Bedient MSW MA at (217) 383-4575 or Caroline Speirs-Coffill MSW at (217) 362-0436. Urbana, Illinois

 

Children’s Hospital of Illinois Perinatal Supportive Care. Part of OSF Healthcare System. Contact: Perinatal supportive care coordinator Sarah Greer RNC-OB, (309) 624-2404. Peoria, Illinois

 

Evanston Hospital of NorthShore University HealthSystem Perinatal Comfort Care Program. Contact: Coordinator Nancy Goldin LCSW, (847) 570-2400 or (847) 570-2883. Evanston, Illinois

Medical Arts Ltd. perinatal hospice support. Contact: Karla Polaschek MD, (309) 779-4285. Moline, Illinois (See also Women's Choice Center, Bettendorf, Iowa)

 

Northwest Community Hospital Perinatal Palliative Care Program. Contact: Jill Kottmeier RN, (847) 618-8415. Arlington Heights, Illinois. 


Prentice Women's Hospital/Northwestern Memorial Hospital perinatal and neonatal palliative care, in collaboration with the Bridges Pediatric Palliative Care Program at Lurie Children's Hospital. Contact: Neonatologist Natalia Henner MD or neonatologist Jessica Fry MD. Chicago, Illinois
 

Rush University Medical Center Fetal & Neonatal Medicine Program. Contact: Maria Reyes RNC MSN, (312) 942-7874. Chicago, Illinois

 

St. Alexius Medical Center Perinatal Palliative Care. Contact: Kristi Moran MSW, (847) 303-7946. Hoffman Estates, Illinois

 

The Haven Network Perinatal Hospice and Bereavement Center. Rockford, Illinois



INDIANA

 

Center for Hospice Care Life Transition Center, including perinatal support for families who receive a diagnosis during pregnancy. Contact: Bereavement coordinator Holly Farmer MA LMHC, (574) 255-1064. Mishawaka, Elkhart, and Plymouth, Indiana
 
Community Health Network Perinatal Palliative Care, including perinatal, infant, and pediatric hospice and bereavement services. Contact: Patient care coordinator Melissa Fields CPNP-PC CHPPN, (317) 621-4900. Indianapolis, Indiana


Deaconess Health System Hand in Hand Perinatal Palliative Care website and brochure, The Women's Hospital, (812) 842-4200. Newburgh, Indiana

 

Franciscan St. Francis Health perinatal hospice. Contact: Bereavement coordinator Joni Cutshaw BSN RNC CPLC, (317) 528-5199. Indianapolis, Indiana

 

Miriam's Blessing, a ministry of the Diocese of Fort Wayne-South Bend. Fort Wayne, Indiana

Pathways Support Program and resources, Riley Hospital for Children Perinatal-Fetal Center, Indiana University (IU) Health Maternity Center, (317) 962-8153. Indianapolis, Indiana

St. Vincent Indianapolis Hospital Center for Perinatal Loss, including perinatal hospice. Indianapolis, Indiana

 


IOWA

Blank Children's Hospital SHINE Program: Perinatal and Pediatric Palliative Care, UnityPoint Health. Contact: (515) 241-5750. Des Moines, Iowa

Mercy Medical Center Perinatal Hospice. Contact: Bereavement and perinatal hospice coordinator Ann Valdez BSN RNC, Mercy Women & Infants' Center, (515) 358-3030. Des Moines, Iowa

University of Iowa Children's Hospital Perinatal Palliative Care. Contact: Sheila B. Frascht RN, CHPPN, CPLC, Grief Services/Pediatric Palliative Care, (319) 356-7411. Iowa City, Iowa

Women's Choice Center, including perinatal support. Contact: Medical director Karla Polaschek MD. Bettendorf, Iowa (See also listing in Moline, Illinois)



KANSAS

 

Choices Medical Clinic perinatal hospice, (316) 687-2792. Wichita, Kansas

University of Kansas Medical Center KU Kids Healing Place prenatal and perinatal supportive care. Contact: Kathy Davis PhD, (913) 588-6336. Kansas City, Kansas

See also Children's Mercy Hospital Pediatric Palliative Care and Children's Mercy Fetal Health Center. Kansas City, Missouri

See also Kansas City Hospice & Palliative Care Carousel Perinatal Program, Kansas City, Missouri

 


KENTUCKY

Bridges of Love, Baptist Health Lexington Perinatal Palliative Care Program, part of Mother and Baby Care. Contact: Perinatal bereavement coordinator Deborah Mueller RN BSN, (859) 260-6904. Lexington, Kentucky

 

Baptist Health Louisville Perinatal Palliative Care Program. Contact Perinatal Bereavement Coordinator Bonnie Hibbs MSN RNC CPLC, (502) 897-8327. Louisville, Kentucky

Footprints Perinatal Palliative Care, St. Elizabeth Healthcare. Contact the St. Elizabeth perinatal team at (859) 301-2500. Edgewood, Kentucky 



LOUISIANA

Woman's Hospital Perinatal Palliative Care. Baton Rouge, Louisiana

Perinatal Palliative Care Hospice Program, Hospice of Baton Rouge, (225) 767-4673. Baton Rouge, Louisiana



MARYLAND

Anne Arundel Medical Center Perinatal Loss and Palliative Care Program. Contact: Program coordinator Ann O'Sullivan RN, (443) 481-6989. Annapolis, Maryland

Chesapeake Kids Perinatal and Infant Loss Support Program, Hospice of the Chesapeake. Contact: Heather Silver LCSW-C, CPLC, The Life Center, (410) 987-2129. Annapolis and Landover, Maryland

Gilchrist Kids Perinatal Hospice and Palliative Care, Gilchrist Hospice Care, an affiliate of Greater Baltimore Medical Center. Contact: Program manager at (443) 849-8200. Hunt Valley, Maryland

Isaiah's Promise, parent-to-parent support provided locally and also long-distance. Email. Rockville, Maryland

Johns Hopkins Hospital perinatal palliative care support. Contact: Perinatal bereavement coordinator Dawn Thurman. See also their video. Baltimore, Maryland

Never Alone Perinatal Palliative Care Program, Holy Cross Hospital. Contact: Perinatal services coordinator Bethany Fox, (301) 754-7672. Silver Spring, Maryland

Rising Hope Perinatal Hospice, Howard County General Hospital (a member of Johns Hopkins Medicine). Contact: Mary Peroutka RN, (410) 884-4709. Columbia, Maryland

 

Shady Grove Medical Center perinatal hospice support. Contact: Clinical nurse manager Amber Richter BSN RNC, (240) 826-6134. Rockville, Maryland

SilverLeaf Counseling Services LLC, offering specialized counseling for perinatal palliative care. Contact: Heather J. Silver, LCSW-C, CPLC. Severna Park, Maryland

 


MASSACHUSETTS

Baystate VNA and Hospice perinatal support, provided through the Massachusetts Pediatric Palliative Care Network. Springfield, Massachusetts

Brigham and Women's Hospital Perinatal Palliative Care Program. Contact: Neonatologist Simon Manning MD, (617) 732-8405. Boston, Massachusetts

Care Dimensions (formerly Hospice of the North Shore & Greater Boston) perinatal palliative care. Contact: Maureen Forbes MS CCLS, (978) 750-9335. Danvers, Massachusetts

Cranberry Hospice Fragile Footprints Pediatric Palliative Care. Contact: Administrator Deborah Dolaway, LICSW, (508) 746-0215. Plymouth, Massachusetts


Good Shepherd Community Care (formerly Hospice of the Good Shepherd) provides perinatal and pediatric hospice and palliative care. Contact: Hallie Kasper NP,  (617) 969-6130. Newton, Massachusetts 

Hope Health Pediatric Palliative Care, including perinatal support. Contact: (508) 957-0200. Brockton, Massachusetts


Hospice Care in The Berkshires pediatric palliative care, including prenatal support. Contact: Program director Christine Frederick LCSW, (413) 443-2994. Pittsfield, Massachusetts

 

Mass General Hospital for Children Perinatal Palliative Care. Contact: Perinatal Palliative Care team, (857) 237-CARE (2273). Boston, Massachusetts

Notre Dame Health Care Perinatal Palliative Care. Worcester, Massachusetts

South Shore Hospital Perinatal Complex Care Program, specializing in perinatal and neonatal palliative care and hospice. Contact: Program director Bonnie Arzuaga MD. South Weymouth, Massachusetts

Tufts Medical Center, Center for Perinatal Palliative Care. Contact: Director Linda Kleeman MD, (617) 636-8176. Boston, Massachusetts

 


MICHIGAN

 

Arbor Hospice/Hospice of Michigan Anchors Perinatal Program. Contact: Teri Turner RN MS CHPN, director of pediatric programming and clinical excellence. 24-hour Pediatric Support Line, covering most of the state of Michigan: (888) 247-5704. Grand Rapids and southeast Michigan

Angela Hospice Prenatal Program, Livonia, Michigan

 

Beaumont Health pediatric hospice, including prenatal support. Contact: Pediatric hospice clinical manager Kimberly Stewart RN BSN, 248-743-9400 (main) or 248-417-3607 (cell). Troy, Michigan

 Bronson Methodist Hospital Perinatal Palliative Care, (269) 341-7533. Kalamazoo, Michigan

Children's Hospital of Michigan Pediatric Palliative Care Team, also offering perinatal palliative care. Detroit, Michigan

Kaleidoscope Kids, Hospices of Henry Ford Health System, Detroit, Michigan

Perinatal Hospice and Tender Care of Washtenaw County. Contact: director Janet Holtz, (734) 395-0400. Ann Arbor, Michigan

 


MINNESOTA

Abbott Northwestern Hospital, Birth Center Case Management Specialists, (612) 863-7585. Minneapolis, Minnesota

Allina Health Mother-Baby Center at United Hospital and Children's Hospitals and Clinics of Minnesota. Birth planning in special situations (PDF). Also Pediatric Advance Care Team referrals, including prenatally. Contact: Annette Klein RN, (651) 241-6206. St. Paul, Minnesota

CentraCare Health-St. Cloud Hospital's Pediatric Palliative Care Program includes perinatal, neonatal, and pediatric services. Contact: (320) 656-7117. St. Cloud, Minnesota

 

Courageous Hearts peer-based prenatal diagnosis support. Contact: (715) 969-4506. Duluth, Minnesota

Children's Hospitals and Clinics Palliative Care & Hospice Program, including referrals before birth. Minneapolis and St. Paul, Minnesota

Fairview Health Services perinatal palliative care, with services available at several hospitals and clinics in the Minneapolis-St. Paul area

 

HealthEast Maternity Care Precious Time personalized support for parents and their infants with life-limiting conditions. Services available at St. John’s Hospital in Maplewood and Woodwinds Health Campus in Woodbury

 

Hennepin County Medical Center Birth Center. Contact: (612) 873-5006 or high-risk clinical care coordinator Tamara Harvanko RN, (612) 873-6552. Minneapolis, Minnesota

Lakewood Health System perinatal hospice, (218) 894-8080 or (800) 525-1033. Staples, Minnesota

Maple Grove Hospital perinatal bereavement services. Contact: Sue Steen RN MS, (763) 581-2223. Maple Grove, Minnesota

 

Mayo Clinic Children's Center ComPASS: Comprehensive Pediatric and Adolescent Support Services, including perinatal palliative care. Rochester, Minnesota

Minnesota Birth Center, home-like, freestanding birth centers staffed by certified nurse-midwives and registered nurses, also offering perinatal hospice support. Founder and medical director: Steven E. Calvin MD, perinatologist. Affiliated with Associates in Women's Health, P.A. (612) 545-5311. Locations in Minneapolis and St. Paul, Minnesota

University of Minnesota Medical Center, Fairview and University of Minnesota Amplatz Children's Hospital, Fairview, Perinatal Palliative Care Program. Contact: Genetics counselor Meg Eilers, (612) 273-5635. Minneapolis, Minnesota

 


MISSISSIPPI

 

University of Mississippi Medical Center and Batson Children's Hospital Center for Maternal and Fetal Care, including palliative care. Contact: W. Richard Boyte MD, professor of pediatrics and division chief of pediatric palliative medicine. Jackson, Mississippi

 

 

MISSOURI

Alexandra's House, Kansas City, Missouri

Barnes Jewish Hospital and Children's Hospital of St. Louis Fetal Care Center Wings Perinatal Hospice Program. St. Louis, Missouri

BJC Hospice Perinatal Program in St. Louis, Sullivan, and Farmington, Missouri; also in Illinois. See their video


Cardinal Glennon Children's Medical Center Footprints, St. Louis, Missouri

Children's Mercy Hospital Pediatric Palliative Care, in conjunction with Children's Mercy Fetal Health Center. Kansas City, Missouri

Kansas City Hospice & Palliative Care Carousel Perinatal Program, Kansas City, Missouri


MONTANA

Billings Clinic Perinatal Palliative Care. Contact: Diane Arkava LCSW, (406) 247-6344. Billings, Montana

 

Kalispell Regional Medical Center perinatal palliative care support. Contact: Neonatologist Kristin Veneman DO, (406) 752-5111. Kalispell, Montana


NEBRASKA

 

Bergan Mercy Medical Center Perinatal Hospice, Alegent Health System. Contact: Coordinator Nancy Kadavy MSN APRN, (402) 398-6014. Omaha, Nebraska


Journey to Love, a peer ministry offering practical guidance and support, sponsored by the Archdiocese of Omaha and affiliated with Be Not Afraid. Contact: Whitney Bradley, (402) 551-9003, ext. 1306. Omaha, Nebraska

Methodist Women's Hospital Perinatal Comfort Care Program. Contact: perinatal comfort care liaison Nina Mohr BSN RN (402) 354-3488, or clinical nurse educator Mary Killpack MSN RN, (402) 354-5634. Omaha, Nebraska

Saint Elizabeth Regional Medical Center EMBRACE Perinatal Palliative Care and Hospice Program. Contact: EMBRACE coordinator, (402) 219-7065. Lincoln, Nebraska

 


NEW HAMPSHIRE

Aliyah Perinatal Hospice Support, Options for Women pregnancy resource center. Contact: Client services director Jennifer Tate RN, (603) 749-4441. Dover, New Hampshire


NEW JERSEY

Circle of Life Children's Center. Contact: Director of Program Services Sheila Walsh APRN BC, (973) 972-1743. Newark, New Jersey

 

Unterberg Children’s Hospital at Monmouth Medical Center Anchor Program: Perinatal and Pediatric Palliative Care. Contact: Maria Graminski LCSW 732-923-7716. Long Branch, New Jersey

Valley Health System Wings of Compassion perinatal hospice support, part of the Butterflies Program. Contact: Dyana Thompson RN MSN CPN, (201) 291-6249. Paramus, New Jersey

 

Virtua Hospital "Lifecare for Little Ones" Perinatal Palliative Care Program. Contact: Ann Coyle RN BSN (856) 247-2232. Voorhees, New Jersey

 


NEW MEXICO

University of New Mexico Children's Hospital Special Delivery. Contact: Medical director Rebecca Moran MD, (505) 272-8955. Albuquerque, New Mexico


NEW YORK

A TIME, a Jewish support organization for those experiencing pregnancy loss and infertility. Contact: Malkie Klaristenfeld, director of services for pregnancy loss, (718) 686-8912. New York, New York

CareFirst Perinatal Palliative Care (formerly Southern Tier Hospice and Palliative Care), Corning, New York

CHOICES Pediatric Palliative Care Program, SUNY Upstate Medical University. Contact: Irene Cherrick MD, (315) 464-5294. Syracuse, New York

Circle of Hope Perinatal Bereavement Program, Hospice Care in Westchester and Putnam. Contact: Maribel Nazario, (914) 666-4228, ext. 336. Tarrytown, New York

CompassionNet pediatric and perinatal palliative care, part of Lifetime Care Home Health and Hospice. Contact: Alyssa Gupton LCSW, (800) 308-3914 or (585) 214-1333. Support available in Rochester, Buffalo, Syracuse, Utica, Binghamton, Elmira, and surrounding areas.

Diana's Hope, National Gianna Center for Women's Health and Fertility at St. Peter's Healthcare System, Regional Medical Campus of Drexel University College of Medicine. Contact: Anne Nolte MD, (212) 481-1219. New York, New York

Footprints on the Heart, Sisters of Charity Hospital. Contact: Nurse coordinator Fran Kane, (716) 862-1678. Buffalo, New York

 

Good Samaritan Hospital Gabriel's Courage perinatal hospice. Contact: Maribeth McKeever LCSW-R, (631) 828-7628. West Islip, New York

Good Samaritan Hospital Perinatal Bereavement Program. Contact: Mary Radatovich LMSW LCSW, (845) 368-5297. Suffern, New York

Hospice Buffalo Essential Care Perinatal Program. Contact: Kelley Clem RN, (716) 686-8173 or (716) 686-8006. Buffalo, New York


Hospice Care Network Perinatal Support. Contact: Mary Gravina CSW, director of bereavement, (631) 666-6873 x203. Long Island, New York

Maggie Rose Perinatal Bereavement Program, Bereavement Center of Westchester. Contact: Patty Donovan-Duff, (914) 961-2818, ext. 305. Tuckahoe, New York

New York-Presbyterian/Morgan Stanley Children's Hospital Neonatal Comfort Care program, including prenatal support. See videowebsite, and brochures in English and Spanish. Contact: Medical director and neonatologist Elvira Parravicini MD, New York City, New York

 

University of Rochester Perinatal Supportive Care Program, University of Rochester Medical Center. Contact: Director Erin Denney-Koelsch MD, assistant professor of medicine and pediatrics, (585) 273-1154. Rochester, New York
 


NORTH CAROLINA

Be Not Afraid, a private non-profit organization which provides comprehensive support to parents carrying to term following a prenatal diagnosis. Includes support diagnosis, during pregnancy, at birth, during the postpartum period and followup for up to one year. Also provides long-distance support nationally. Charlotte, North Carolina

Brenner Children's Hospital Care Always perinatal and neonatal palliative care, Wake Forest Baptist Health. Contact: Christine Elizabeth Bishop MD. Winston-Salem, North Carolina

Duke Children's Hospital and Health Center prenatal, neonatal, and pediatric palliative care. Durham, North Carolina


Eva's Footprints perinatal bereavement support, Mountain Area Pregnancy Services. Contact: Hannah Kennedy MA, grief care pastoral counselor, (828) 252-1306. Asheville, North Carolina

Kids Path Perinatal Hospice, part of Kids Path pediatric services, Hospice and Palliative Care of Greensboro, North Carolina

 

Levine Children’s Hospital Pediatric Advanced Care Team (PACT), Carolinas HealthCare System. Contact: Palliative care social worker Allie Shukraft MAT MSW LCSWA, (704) 446-2811. Charlotte, North Carolina

 

Mountain Valley Hospice & Palliative Care perinatal hospice, Mount Airy, North Carolina

Transitions Kids, a division of Transitions LifeCare. Provides prenatal counseling in the home, accompanies parents to prenatal appointments if desired, and collaborates with local hospitals for continuity of care. Contact: Lily Gillmor MSPC, BSN, RN, CHPPN, director of Transitions Kids, (919) 719-6874, 24/7 Nurse Line: (919) 980-5439. Raleigh, North Carolina

 

University of North Carolina Center for Maternal and Fetal Health Perinatal Palliative Care, Chapel Hill, North Carolina



NORTH DAKOTA


Essentia Health Caring Hearts Perinatal Program. Fargo, North Dakota

 


OHIO

Cincinnati Children's Hospital Medical Center StarShine Perinatal Hospice, Cincinnati, Ohio

Cleveland Clinic Fetal Care Center. Contact: Donna Patno CNM DNP, (866) 864-0430. Cleveland, Ohio

Hospice of the Western Reserve Perinatal Care Program and brochure. Cleveland, Ohio

Journey of Hope Perinatal Hospice, Miami Valley Women's Center. Contact: Nancy Jensen RN, (937) 298-9998, Dayton, Ohio

Maternal-Child/Pediatric Palliative Care (MACPAC) at Mercy Children's Hospital and Mercy St. Vincent. Contact: Angie Westenkirchner RN, maternal-fetal medicine high-risk patient navigator, (419) 251-8065. Toledo, Ohio

Miami Valley Hospital/Dayton Children's Hospital Fetal to Newborn Care Center, including perinatal hospice support. Dayton, Ohio

Nationwide Children's Hospital Homecare perinatal hospice care. Columbus, Ohio

 

Ohio Fetal Medicine Collaborative, a consortium of six hospitals (Dayton Children's, Mount Carmel, Nationwide Children's, Miami Valley, OhioHealth, and Ohio State University Wexler Medical Center), with services including perinatal palliative care.

 

Rainbow Babies & Children's Hospital Pediatric Palliative Care Center. Contact: Ann Marie Dragon RN BSN MBA, clinical coordinator, (216) 286-4215. Cleveland, Ohio

Sufficient Grace Ministries Perinatal Hospice and Bereavement Services, providing in-person and online peer-based support. Contact: Kelly Gerken, (419) 722-6978. Deshler, Ohio

 

The Toledo Hospital/Toledo Children's Hospital perinatal palliative care, ProMedica Health System. Contact: Social worker Kim Folk-Axe, (419) 291-5421, or Chaplain Julie Beitelschees, (419) 291-3656. Toledo, Ohio



OKLAHOMA
 

OU Medical Center Perinatal Palliative Care. Contact: (405) 271-2387. Oklahoma City, Oklahoma

The SILAS Program, perinatal palliative care at Helmerich Women's Health Center, Hillcrest Healthcare System. Tulsa, Oklahoma


OREGON

 

Bridges Palliative Care, including perinatal support, at Doernbecher Children’s Hospital at Oregon Health & Science University. Contact: Pediatric nurse practitioner Kathy Perko RN MS, (503) 418-5172. Portland, Oregon

 

 

PENNSYLVANIA

Children's Hospital of Philadelphia Perinatal Palliative Care at the Center for Fetal Diagnosis and Treatment. Contact: Perinatal palliative care and bereavement, (800) 468-8376. Philadelphia, Pennsylvania


Delaware County Memorial Hospital Perinatal Palliative Care Program. Contact: Perinatal Bereavement Services at (610) 394-4798. Drexel Hill, Pennsylvania

 

Delaware Hospice Katybug Pediatric Program, including support before and after birth. Contact: Director of admissions Erica Galbreath, (302) 478-5707. Serving families throughout Delaware and southeastern Pennsylvania.

 

Homeland Hospice Pediatric Care, including perinatal support. Contact: Pediatric hospice program director Caroline McCardell RN, (717) 221-7890. Harrisburg, Pennsylvania

 

Janet Weis Children’s Hospital’s Perinatal Palliative Care at the Center for Prenatal Pediatrics, Geisinger Health System. Contact: Perinatal palliative care coordinator and clinical care specialist Mindy Lewis MSW LSW, (570) 214-4621. Danville, Pennsylvania

 

Jefferson Health CORE Perinatal Palliative Care Team. Contact: Coordinator Jane M. Cavanaugh RN, (215) 955-8346. Philadelphia, Pennsylvania

Lancaster General Health Perinatal Palliative Care. Contact: Perinatal palliative care coordinator Sharon Kauffman MSN RN CPLC, (717) 544-3418. Lancaster, Pennsylvania

Lily's Gift, a collaboration of the Office for Persons with Disabilities, the Office of Life and Family, and Catholic Social Services of the Archdiocese of Philadelphia. Contact: Sr. Kathleen Schipani, (215) 587-3530 or Kathleen Bevenour, (215) 945-2550. Philadelphia, Pennsylvania

St. Christopher's Hospital for Children perinatal palliative care support. Contact: Palliative Care Program (215) 427-8352 or the Regional Fetal Evaluation Center (215) 427-5521. Philadelphia, Pennsylvania

Tender Hope Perinatal Hospice, a division of SUN Home Health and Hospice, (888) 478-6227. Northumberland, Pennsylvania

 

The Promise: Pittsburgh's Perinatal Palliative Care Initiative, a program of Catholic Palliative Services, a division of Catholic Hospice. Contact: Perinatal palliative care coordinator Lori Heil, (866) 933-6221. Pittsburgh, Pennsylvania

 

University of Pittsburgh Perinatal Palliative Care Program at Children’s Hospital of Pittsburgh and Magee Women’s Hospital, a comprehensive program composed of a board-certified hospice and palliative care physician, a physician assistant, a manager with extensive hospice experience, and a bereavement coordinator. Care is coordinated with specialists in maternal-fetal medicine, neonatology, and genetics at the Fetal Diagnostic Treatment Center at UPMC. Families are not required to deliver at a UPMC facility in order to receive care. Contact: Program manager Carol May, (412) 692-3234.

WellSpan York Hospital Loving with Grace perinatal palliative care program. Contact: Program coordinators Amanda Delridge RN and Jill Royer BSN, (717) 851-4730. York, Pennsylvania

 

West Penn Hospital PEACE Program (Perinatal, End of Life, and Compassionate Care Experience), Allegheny Health Network Perinatal Associates. Contact: Kathleen Maher MS LCGC, (412) 578-3853. Pittsburgh, Pennsylvania


You Are Not Alone, parent support sponsored by the Diocese of Allentown. Contact: Sr. Janice Marie Johnson RSM, (610) 289-8900 x245 or Teri Dakuginow, (610) 435-1541 x334. Allentown, Pennsylvania

 


RHODE ISLAND

My Child, My Gift, parent support sponsored by the Diocese of Providence and affiliated with Be Not Afraid. Providence, Rhode Island

Women & Infants' Hospital of Rhode Island Perinatal Palliative Care Program. Contact: Neonatologist Beatrice Lechner MD, (401) 274-1100. Providence, Rhode Island


SOUTH CAROLINA

 

Children's Hospital of Greenville Memorial Hospital Perinatal Care. Contact: Arun L. Singh, MD, FAAP, FAHPM, (864) 546-8955. Greenville, South Carolina


COMPASS (Comprehensive Perinatal, Pediatric, and Adolescent Support Service) at Palmetto Health Children's Hospital. Contact: Nurse coordinator Debbie Kamowski RN BSN CHPPN, (803) 434-2249. Columbia, South Carolina

 

Medical University of South Carolina Children's Hospital Palliative Care. Contact: Palliative care program medical director Conrad Williams MD FAAP, (843) 792-6062. Charleston, South Carolina

Perinatal ComfortCare, providing support services guided by OB nurses experienced in perinatal bereavement. Also provides long-distance support. Contact: CEO and founder Tammy Tate RN, (864) 419-4519. Greenville, South Carolina

 


SOUTH DAKOTA

Avera McKennan Palliative Care Service, Avera McKennan Hospital. Contact: Medical director Joann Bennett DO FACOI, Nancy Terveen NP (605) 322-8993; Michele Snyders MSW, Anna Perry MSW, (605) 322-8273. Sioux Falls, South Dakota

Sanford Children's Hospital Pediatric Palliative Care. Contact: Lawrence Fenton MD or Pam Koepsell RN, (605) 312-1062. Sioux Falls, South Dakota


TENNESSEE

Alive Hospice Monarchs perinatal program, Nashville, Tennessee


Hospice of Chattanooga Perinatal Care Program, Chattanooga, Tennessee

Jackson-Madison County General Hospital Women's Center perinatal palliative care support. Contact: Perinatal bereavement coordinator LeighAnn Sutton LBSW, (731) 541-6246. Jackson, Tennessee

 

Kangaroo Kidz perinatal and pediatric palliative care. Cleveland, Tennessee

Monroe Carell Jr. Children's Hospital at Vanderbilt Pediatric Palliative Care, through the Fetal Center. Contact: Genetic counselor Martha Dudek MS CGS, (615) 343-4673. Nashville, Tennessee

 

Quality of Life for All Kids at Methodist Alliance in affiliation with Le Bonheur Children's Hospital and St. Jude Children's Research Hospital. Contact: Shayla Williamson, director, RN (901) 378-8419. Memphis, Tennessee

St. Thomas Midtown Hospital perinatal hospice program. Nashville, Tennessee

 


TEXAS

Cook Children's Medical Center. Contact: NICU nurse manager Sheralyn Hartline, palliative care medical director Todd Pearson MD, or neonatologist and palliative care specialist Terri Weinman DO, (682) 885-4283. Dr. Weinman can also be reached at Texas Health Harris Methodist Hospital Fort Worth (see listing below). Fort Worth, Texas

 

Community Hospice of Texas Little Doves Pediatric Hospice Program, including prenatal support. Dallas-Fort Worth and Waco, Texas

 

Houston Hospice Butterfly Program perinatal hospice, Houston, Texas

 

Hospice of Wichita Falls, providing pediatric and perinatal hospice & palliative care across a 12-county area. Contact: Medical director J. Robert Parkey MD MTS HMDC or chief of clinical services Shelby Crabtree RN, (940) 691-0982. Wichita Falls, Texas


Jerome's Hope, a support ministry for prenatal diagnosis or neonatal death offered through the Archdiocese of Galveston-Houston. Houston, Texas

 

Journey of Hope/Viaje de Esperanza, University of Texas Health Science Center at San Antonio. Contact: Peggy Humm MSN RN, (210) 843-4719. San Antonio, Texas

Kinder Hope Perinatal Hospice Care, Hope Hospice, (830) 625-7525 or (800) 499-7501. New Braunfels, Texas

 

Love's Legacy Perinatal Hospice Support Care, Next Step Women's Center. Contact:  Bethann Richard RN, (817) 295-4101 or (817) 932-5488. Burleson and Fort Worth, Texas

Medical City Women's and Children's Hospital Advanced Maternal and Newborn Institute palliative care. Contact: Michelle Jones RN, (972) 566-8585. Dallas, Texas

Providence Children's Hospital/Sierra Providence La Mariposa Hospice Treasured Moments perinatal palliative care. Contact: (915) 577-7870. El Paso, Texas

Texas Fetal Center, University of Texas Health Science Center, Children's Memorial Hermann Hospital. Contact: Karen Moise RN, Fetal Center clinical coordinator, (832) 325-7288; Gina Leigh Jones RN, coordinator of bereavement and supportive care services, (713) 704-5068; or Kim Cole RNC NNP-BC or Kristie Cullum RN BSN CHPN, (713) 704-0495. Houston, Texas

Texas Health Harris Methodist Hospital Fort Worth weeCare perinatal and neonatal palliative care program. Contact: Medical director Terri Weinman DO, leader of the perinatal palliative care team for Pediatrix Medical Group of Fort Worth, (817) 250-2892. Dr. Weinman can also be reached at Cook Children's Medical Center (see listing above). Fort Worth, Texas

Pediatric and Perinatal/Neonatal Palliative Program of the Permian Basin, West Texas Maternal Fetal Medicine Center. Contact: Jamie Chase MS CGC. Odessa, Texas

University of Texas Medical Branch Perinatal Hospice and Palliative Care. Galveston, Texas

 


UTAH

Angel Watch, Intermountain Health Care. Contact: (801) 698-4486. Salt Lake City, Utah

 

Primary Children's Medical Center/University of Utah Health Care Rainbow Kids Pediatric Palliative Care Program, including prenatal support. Contact: Nurse coordinator Beth Nordfors RN, (801) 662-3770. Salt Lake City, Utah  

 


VIRGINIA

Edmarc Hospice for Children Perinatal Program. Contact: (757) 967-9251. Portsmouth, Virginia

Embracing Grace parent-to-parent peer support. Richmond, Virginia

 

Inova Fairfax Hospital Perinatal Concerns Program. Contact: Kelly Gallo RN, (703) 776-6371. Falls Church, Virginia

Mary Washington Hospital Family Birth Place perinatal bereavement services. Contact: Perinatal bereavement coordinator Tammy Ruiz Ziegler RN CPLC, (540) 741-3268. See also her video about perinatal hospice, translated into multiple languages. Fredericksburg, Virginia

St. Francis Medical Center perinatal palliative care program. Contact: Perinatal bereavement coordinator Michelle Henderson RNC-OB, CCL, (804) 594-3250, (804) 594-3291. Midlothian, Virginia

 

St. Mary's Hospital Noah's Children perinatal care, St. Mary's Hospital. Richmond, Virginia


Tepeyac Family Center Kristin Anderson Perinatal Hospice Program, (703) 273-9440, Fairfax, Virginia

 


WASHINGTON

Lavender Tree Perinatal Hospice Support, Care Net of Pierce County, (253) 770-8697 or email. Puyallup, Washington

 

Providence Hospice of Seattle Stepping Stones Perinatal Program, Providence Health & Services. Seattle, Washington


Providence Health & Services Forget-Me-Not Perinatal Palliative Care, available through Providence Sacred Heart Medical Center in Spokane, Providence Palliative Care in Spokane, and the Family Birth Center at St. Peter Hospital in Olympia, Washington


WEST VIRGINIA

Byron C. Calhoun MD FACOG FACS MBA, professor and vice chair, Maternal-Fetal Medicine Division, West Virginia University-Charleston and Charleston Area Medical Center, (304) 388-1599. Charleston, West Virginia

West Virginia University Children's Hospital Pediatric Supportive Care Team, including perinatal consults. Contact: Pediatric palliative care physician Joshua Dower MD. Morgantown, West Virginia

 


WISCONSIN
 

Beyond the Rain, doula services and peer support in Janesville, Wisconsin

Children's Hospital of Wisconsin Fetal Concerns Program perinatal palliative care. Milwaukee, Wisconsin

Gundersen Health System perinatal palliative care. Contact: Bereavement specialist Marie A. Walter MS RN C-EFM CPLC, (608) 775-3796 or (800) 362-9567 ext. 53796. La Crosse, Wisconsin

UnityPoint Health Meriter Hospital Perinatal Palliative Care. Madison, Wisconsin

St. Elizabeth Hospital (part of Ascension) Perinatal CARE Program. Contact: Sherah Sroka MSW, (920) 738-2094. Appleton, Wisconsin

 

St. Vincent Hospital pregnancy and infant loss support. Contact: Perinatal palliative care and bereavement coordinators Lana Reinke RN CPLC (NICU) or genetic counselor Theresa Shuck MS MA CGC CPLC. Green Bay, Wisconsin

 

 

 

                                   INTERNATIONAL                                              

 

 

ARGENTINA

 

Hospital Nacional Prof. Alejandro Posadas pediatric palliative care, including prenatal support. Contact: Pediatric palliative care director Rut J. Kiman MD. Buenos Aires, Argentina


AUSTRALIA

 

Children's Health Queensland Paediatric Palliative Care, including antenatal referrals, Lady Cilento Children's Hospital. South Brisbane, Queensland, Australia


Perinatal Palliative Care, sponsored by Catholic Health Australia, Mater Health, Mercy Health, and Calvary Health Care, with 13 hospital and clinic locations in Adelaide, Brisbane, Canberra, Hobart, Launceston, Mackay, Melbourne, North Queensland, and Wagga Wagga.

 

Women's and Children's Hospital paediatric palliative care. Contact: Maternal-Fetal Medicine coordinator or pediatric palliative care team at 08 8161 7000. North Adelaide, Australia


CANADA

 

Alberta


Alberta Children's Hospital Children's Hospice and Palliative Care Service, also accepting referrals for perinatal hospice. Contact: Clinical nurse specialist Kathryn da Silva, (403) 955-5460. Calgary, Alberta

 

Family Physician Navigator program, accepting referrals (from physicians or self-referrals) for family physician support to navigate high risk pregnancies with life-limiting illnesses. Contact: Thomas Bouchard MD, (403) 271-5124. Calgary, Alberta
 

Capital Health Pediatric Palliative Care Program, Child Health Program. Contact: (780) 407-7210 (physician) or (780) 407-7652 (nurse coordinator), the ASSIST team at Stollery Children's Hospital, or email Tara Wren. Edmonton, Alberta

British Columbia


Canuck Place Children’s Hospice offers comprehensive pediatric hospice and palliative care, including perinatal support. Email or phone: (604) 731-4847. Vancouver, British Columbia

 

 Manitoba

 

Winnipeg Regional Health Authority Palliative Care Program, including perinatal consultation and support. Contact: (204) 237-2400. Winnipeg, Manitoba

 

Ontario
 

London Health Sciences Centre Perinatal Hospice. Contact: Genetic counsellor Stephanie Ho, Medical Genetics Program, (519) 685-8500, ext. 52428. London, Ontario

McMaster Children's Hospital Quality of Life & Advanced Care (QoLA Care), including perinatal palliative care. Contact: 905-521-2100x73373, email qolacare@hhsc.ca. Hamilton, Ontario

Roger Neilson House pediatric hospice, offering perinatal palliative care in collaboration with the Children’s Hospital of Eastern Ontario. Contact: Perinatal hospice coordinators Lesley Sabourin RN or Jodi Ouellette RN, (613) 523-6300 x 671 or email. Ottawa, Ontario 

Trillium Health Partners perinatal and paediatric palliative care services. Contact: Palliative care facilitator Gurjit Sangha, (905) 813-1100 ext. 6573. Mississauga, Ontario


University of Toronto Hospital for Sick Children Paediatric Advanced Care Team, including antenatal support. Families are also assisted by the Pathways Grief Support Program. See also this explanation of palliative care for newborns. Contact: Palliative care and bereavement coordinator Lori Ives-Baine RN, (416) 813-6782. Toronto, Ontario

 

Nova Scotia

IWK Health Centre Pediatric Palliative Care Service, IWK Health Centre. Contact: (902) 470-7262 or email Marie-Claude Grégoire MD or clinical nurse specialist Grace MacConnell. Halifax, Nova Scotia

 

Québec

 

Montreal Children's Hospital/McGill University Health Centre Pediatric Palliative Care Program, including antenatal consultations and bereavement followup. Montreal, Québec


CHILE

Acompañar-es Perinatal Palliative Care, Catholic University Hospital. Contact: Dr. Jorge Neira, Department of Gynecology and Obstetrics UC, (56) (2) 23548077 or email. Santiago, Chile

 
CZECH REPUBLIC

 

Cesta Domů (Going Home), hospice care including prenatal counseling. Contact: Head of support team and psychosocial worker Jindřiška Prokopová. Prague, Czech Republic

 

The Institute for the Care of Mother and Child, including perinatal palliative care support. Prague, Czech Republic 

Perinatální Hospic Dítě v Srdci (Child in the Heart). Contact: Director Alena Peremská, tel. 731 188 116 or email; also on Facebook. Team providing personal support in Hradec Kralové, Kostelec nad Orlici and surrounding areas in the Czech Republic

Perinatální hospicová a paliativní péče, resources and list of medical professionals available to help in Prague, Brno, Plzeň and other cities in the Czech Republic

 

See also the book Perinatální paliativní péče by K. Ratislavová (Praha: Grada Publishing, 2016).


ENGLAND

Acorns Children's Hospice, including antenatal support. Birmingham, Worcester, and Walsall, England

 

Chelsea and Westminster Hospital perinatal palliative care. Contact: Alexandra Mancini, lead nurse for Complex, Palliative and Bereavement Care, tel: 07805 739785. London, England

 

Claire House Children's Hospice perinatal palliative care. Contact: Katrina Williams, perinatal palliative care nurse consultant, 0151 334 4626, mobile 07824326068. Bebington, Wirral, England

Forget Me Not Children's Hospice Neonatal Inreach Project, including antenatal support for families whose baby has been diagnosed with a life-limiting anomaly; Russell House, tel. 01484 411042. Huddersfield, West Yorkshire, England

 

Martin House antenatal and neonatal support. Leeds, England


The Maypole Project offers emotional psychosocial support, including prenatal support, integrated with children's hospices and children's hospitals in southeast London and Kent to ensure a holistic package of care.

Together for Short Lives, a U.K. charity for children with life-threatening and life-limiting conditions, also provides prenatal support and information.

Walking With You, an independent specialist midwifery service, working in conjunction with the NHS. Contact: Angie Bowles​, 07974 729566. Based in Keymer, West Sussex and covers East Sussex, West Sussex and Surrey.

See also the online perinatal palliative care training available from the Royal College of Midwives.

 


FRANCE

Department of Neonatology, University Hospital North; Assistance Publique-Hôpitaux de Marseille. Contact: Barthélémy Tosello MD. Marseille, France

Soin Palliatif Centre National De Ressources Accompagner son bébé en fin de vie: les soins palliatifs autour de la naissance. Paris, France

Soins Palliatifs et Accompagnement en Maternité, SPAMA (Palliative Care and Support in Pregnancy). See also the book Un enfant pour l'éternité by Isabelle de Mézerac, also available in Spanish and Portuguese


GERMANY

Parents Helping Parents: Continuing a pregnancy after a prenatal diagnosis. Forthcoming book: Weitertragen: Wege nach pränataler Diagnose (Further: After prenatal diagnosis). See also palliative-geburt.info. Bruck, Germany

 

University Hospital Charité Berlin neonatal palliative care, including prenatal counseling and support. Berlin, Germany

See also:

"Palliative Care and Grief Counseling in Perinatology and Neonatology: Recommendations for professional caregivers in the field of prenatal diagnostics, pregnancy crisis counseling, obstetrics, neonatology, pediatrics and aftercare," by Palliativ- und Trauerbegleitung in der Neonatologie (PaluTiN), available in English and German


HUNGARY

 

Perinatal Intensive Center, 2nd Department of Obstetrics and Gynecology, Semmelweis University, Contact: Eva Czemmel or István Kocsis MD PhD DEAA, head of neonatal services, tel: +36-1-3137856. Budapest, Hungary

 

 

IRELAND

Coombe Women & Infants University Hospital antenatal support. Contact: Director of fetal medicine Carmen Regan MD or Brid Shine, clinical midwife specialist in bereavement and mental health, 00 353 (1) 408 5200. Dublin, Ireland

Perinatal bereavement support at Cork University Maternity Hospital perinatal bereavement support. Contact: Hospital Chaplain Daniel Nuzum, 00 353 (21) 492 0500. Wilton, Cork, Ireland

For parent-to-parent support: A Little Lifetime Foundation, a Dublin organization providing support to bereaved parents including those with a prenatal diagnosis, and One Day More and Every Life Counts, for those continuing a pregnancy after a prenatal diagnosis


ITALY

Cà Foncello Hospital Perinatal Palliative Care Program, providing prenatal and neonatal support for families whose babies have life-threatening and life-limiting conditions. Contacts: Nadia Battajon or neonatal intensive care unit director Paola Lago MD, tel. +39 0422 322666. Treviso, Italy

 

Gemelli Hospital center for perinatal palliative care. Contact: Perinatal hospice director Giuseppe Noia MD. See also Fondazione "Il Cuore in una Goccia" Onlus for professional education and advocacy. Rome, Italy

La Quercia Millenaria c/o CAFT Fiano Romano. Contact: Sabrina Pietrangeli Paluzzi, tel. 0765-451160, cell 3208010942. Rome, Italy

La Quercia Millenaria perinatal hospice at Santa Chiara Hospital, University of Pisa. Contact: Bianca De Pascalis, cell 3470445933. Pisa, Italy

 

La Quercia Millenaria c/o Salesi Hospital. Contact: Fernando and Valentina Taborro, tel. 335-7691233. Ancona, Italy

 

La Quercia Millenaria c/o Azienda Ospedaliera Carlo Poma. Contact: Samuela Boni, tel. +393479780079, or Alberta Gavioli MD, tel. +393357070703. Mantova, Italy

Percorso Giacomo (James' Path) perinatal hospice, Sant'Orsola Hospital, University of Bologna. Contact: Neonatologist Chiara Locatelli MD or by email . Bologna, Italy

 

Perinatal palliative care group, Departments of Neonatology and Obstetrics, University of Milano-Bicocca; San Gerardo Hospital – MBBM Foundation. Contact: Giuseppe Paterlini MD, phone: +39392339197. Monza, Italy

Villa Betania Hospital Perinatal Hospice, providing prenatal and neonatal support for families whose baby has life-threatening and life-limiting conditions. Contact: Annalisa Agangi MD, Department of Obstetrics; or Franca Sarracino RN, Department of Neonatology, tel 3389832624. Naples, Italy

 

See also these books:

 

 

MEXICO

 

ECA—Grupo De Apoyo Ante Pérdidas Gestacionales Y De La Niñez Temprana. Contact: General coordinator Erika Ortiz, tel. 5557023915 within Mexico or mobile 044 55 2069 9935. Mexico City, Mexico

 

Hospital Civil de Guadalajara Juan I. Menchaca. Contact: Yuriko Nakashima MD, tel. +52(33) 36183962, ext. 1307. Guadalajara, Jalisco, Mexico


NEW ZEALAND

Starship Children's Hospital pediatric palliative care team. Auckland, New Zealand

The Therese Programme, providing perinatal hospice information and support after an adverse prenatal diagnosis; a project of Family Life International NZ. Auckland, Poirirua, and Dunedin, New Zealand

 

 

NICARAGUA

Centro de Coordinación Para El Acompañimiento de Madres con un Hijo/a Terminal, Associación de Médicos Catolicos, Humanae Vitae. Contact: Walter Zamora Palma MD, Rafael Diaz Salazar MD, Juan Herrera Salazar MD, tel. 2270 3359, 2278 1169. Managua, Nicaragua

 


NORWAY

Hospice i mors liv —A virtual "hospice in the womb" that offers guidance and peer support, throughout the pregnancy and after. See also the e-book Evy Kristine: Retten til et annerledesbarn. Contact: Siri Fuglem Berg MD PhD, tel. +47 90 70 10 11. Gjovik, Norway

Hospice i mors liv (hospice in the womb), "Yes for palliative units and care for children in Norway," an advocacy organization. Kristiansand, Norway


PARAGUAY

Fundación Juan Pablito , "la vida compatible con el amor." Asunción, Paraguay


POLAND

Gajusz Foundation pediatric and perinatal hospice care. Lodz, Poland

 

Hospicjum dla Dzieci Dolnego Śląska, including perinatal hospice care. Wroclaw, Poland

Hospicyjna Opieka Perinatalna (Perinatal Hospice Care), Fr. Dutkiewicz Hospice, Hospice Foundation. Gdansk, Poland

 

Krakowskie Hospicjum dla Dzieci imienia księdza Józefa Tischnera, including perinatal hospice care. Krakow, Poland

Śląskie Hospicjum Perinatalne, Katowice, Poland

 

Warsaw Perinatal Hospice  and Perinatal Ultrasound Clinic. Warsaw Poland.

Wroclaw Hospice for Children Hospicjum Perinatalne. Wroclaw, Poland

See also:

 


SCOTLAND

Perinatal palliative care pilot project, National Health Service Lothian. Contact: Neonatologist Edile Murdoch MD. Edinburgh, Scotland

 

 

SINGAPORE

 

KK Women’s and Children’s Hospital, part of an academic medical center affiliated with National University of Singapore and NUS-Duke University Medical School. Contact: Palliative consultant Komal Tewani MBBS, MMED (FM), MCFP (S), FAMS. Singapore

 


SOUTH AFRICA

Sunflower Children's Hospice neonatal and palliative care service. Bloemfontein, South Africa


SPAIN

HSJD Hospice Perinatal Program, Hospital Sant Joan de Déu. Contact: Ana Martín Ancel MD, Department of Neonatology. Barcelona, Spain

Hospital Virgen de la Salud de Toledo Perinatal Palliative Care Project. Contact: Ana Belén Escobar MD, Department of Neonatology. Toledo. Spain

 

 

UKRAINE

Слід Життя (Perinatal Hospice - Imprint of Life). Contact: Giustina Olha Holubets, geneticist, medical psychologist and consultant in clinical bioethics, tel. +38 (097) 096 18 04 and +38 (063) 273 67 68. Lviv, Ukraine

 

URUGUAY

Pereira Rossell Hospital Center perinatal palliative care program. Contact: Rita Rufo, coordinator of perinatal palliative care. Montevideo, Uruguay

 

 

WALES

Cardiff Children's Hospital Paediatric Palliative Care Network, including perinatal support. Contact: Linda Baker, tel: +44 29 2074 3373. Cardiff, Wales

​​

 

If your organization provides formal or informal perinatal hospice support and you would like to be added to this list, please contact the editor of this site.

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