Media Coverage Related to Perinatal Hospice

FEATURED STORIES

America Magazine, "The hospital program for parents facing tragic prenatal diagnoses," by Kerry Weber, August 19, 2019

 

WGN-TV Chicago, "Perinatal hospice care helps parents welcome their baby, then say goodbye," by Dina Bair and Katharin Czink, August 1, 2019

Crux, "Perinatal care helps families deal with 'heartbreaking situations," by Charles C. Camosy, June 15, 2019

Wall Street Journal, "When parents know their newborns won't live long," by Ellie Kincaid, March 10, 2017.

 

Pallimed: A Hospice & Palliative Medicine Blog, "'Incompatible with life,' compatible with love," by Amy Kuebelbeck, October 2016.

 

Washington Post, "Perinatal hospice care prepares parents for the end, at life’s beginning," by Danielle Paquette, April 16, 2016.

 

MSNBC.com, "When a baby is destined to die: Perinatal hospices support families with a terminal prenatal diagnosis", by Linda Dahlstrom, March 24, 2008.

 

New York Times, "A place to turn when a newborn is fated to die," by Neela Banerjee, March 13, 2007, page A1. 

 

MedPage Today, "How perinatal hospice helps parents cope: Helping parents who want to continue a pregnancy despite baby's terminal illness," by Shannon Firth, Feb. 25, 2015.

 

Lamaze International, Giving Birth with Confidence blog, "Support for pregnancy and birth after a fatal diagnosis," December 9, 2013.

 

Canadian Medical Association Journal, "Providing hospice in the womb," by Roger Collier, Feb. 17, 2011.

 

WebMD.com, "Neonatal palliative care: Focus on life," July 1, 2013.

 

Philadelphia Inquirer, "Perinatal hospice offers an alternative for parents of fetuses with terminal conditions," by Erica Cohen, April 11, 2013.

 

Psychology Today blog, "A Gift of Time: Perinatal hospice is an unexpected source of joy and peace," by Deborah L. Davis, Ph.D., Dec. 15, 2011.

 

Dallas Morning News, "Choosing Thomas: A family's decision to let their son live, if only for a brief time," by Lee Hancock, Aug. 30 and Sept. 6, 2009. Video

 


MAINSTREAM MEDIA
 

ABC 57 TV, "Making picture-perfect memories," South Bend, Indiana, May 12, 2014.

 

About.com, "Book shares stories of perinatal hospice," by Terri Mauro, Feb. 8, 2012.

About.com, "The Tiniest of Patients: Perinatal hospice," by Angela Morrow, April 17, 2008.

Aeon, "Nadia's Story," by Ana Todorovic, July 21, 2016.

Albuquerque (New Mexico) Journal, "Sophee 'changed a lot of people' during her short life" and "Cradle of compassion," by Donna Olmstead, Oct. 14, 2013.

 

Anchorage Daily News, "When birth means saying goodbye," by Julia O'Malley, November 2, 2013.

Arizona Republic, "When hospice care is needed for newborn babies," by Lin Sue Cooney, June 28, 2017.

Australian, "How do you spend the final days with a loved one?" by Jodi Rose, Feb. 14, 2015.

 

Baltimore Sun, "Perinatal hospices help mothers cope with the impending deaths of their babies," by Andrea Walker, July 27, 2013.

 

BBC News, "Newborn baby Teddy was UK's youngest-ever organ donor," April 23, 2015.

 

BBC News, "Woman who lost baby at 32 weeks calls for 'first-class' perinatal hospice care," by Marie-Louise Connolly, May 12, 2016.
 

Bend (Oregon) Bulletin, Hawryluk M. "A gradual goodbye: Faced with a decision no one would want to make, a Redmond family finds support after ill-fated pregnancy" and "Perinatal hospice helps parents in difficult time," Sept. 13, 2007.

Buffalo (N.Y.) News, Davis HL. "Handling darkness at the dawn of life: Hospice for infants." Oct. 23, 2007.

Buffalo (N.Y.) News, Burtis A. "Grief helps us to see what's truly important." Oct. 2, 2008.

Charlotte (N.C.) Observer, Garloch K. "99 minutes: A life, a legacy." Nov. 14-17, 2010. Series included multiple stories, including "Acknowledging these parents' special grief." Nov. 15, 2010.

Chicago Tribune, "We're taking Harley home to live, not to die," by Jerry Davich, July 15, 2016.

 

Cleveland Magazine, Aungst H. "Georgianna's Choice." June 2008.

Cleveland Plain-Dealer, Townsend A. "Perinatal hospices prepare families for inevitable loss" and "Pair's book on perinatal hospice due in 2010." Aug. 10, 2008.

 

CNN, "The photo of a lifetime," by Sarah LeTrent, Oct. 16, 2014.

 

Conversation (Australia), "We need palliative care for babies facing certain death," by Dominic Wilkinson MD, July 15, 2013.

Dallas Morning News, Hancock L. "Choosing Thomas: A family's decision to let their son live, if only for a brief time." Aug. 30 and Sept. 6, 2009. Video
 

DenverChannel.com, "Families coping with death of baby before birth get support from 7Everyday Hero and String of Pearls," June 12, 2014.

 

Denver Post, Augé K. "Hospices help shared grief: Through hospice programs, parents get help in coping with an infant's death." April 9, 2007.

Des Moines Register, Gifford J. "Support program keys on birth losses." Oct. 10, 2007.

Des Moines Register, Villanueva-Whitman E. "Honored to help families." April 5, 2011.

Deseret (Utah) Morning News, Jarvik E. "When a birth is also a death: Angel Watch helps parents celebrate life — however brief." March 1, 2008.

Free-Lance Star (Fredericksburg, Virginia), "Mary Washington Hospital program helps grieving parents cope with loss," by Amy Flowers Umble, February 28, 2016.

Fredericksburg (Va.) Free Lance-Star, Dyson C. "The brief life of Baby Paul," Sept. 27, 2009.

 

Gainesville (Ga.) Times, Gilbert D. “When birth ends in loss: Medical Center's new hospice program helps parents cope with grief.” May 20, 2007.

Glendale (Arizona) Star, "Holiday wish fulfilled for mom and infant through Hospice of the Valley," by Beverly Medlyn, Dec. 23, 2013.

 

Good Morning America, "South Carolina couple to carry baby with fatal condition to term: 'She's still very much loved,'" by Nicole Pelletiere, May 26, 2017.

 

Grand Rapids Press, Albanese E. "Family shares how hospice program prepared them for short time with daughter with fatal disorder." October 26, 2009.

Greenville (S.C.) News, Osby L. "'You know he was here': Couples whose babies are destined to die get loving support through network." July 1, 2008. 

Guardian (London), "Teddy Houlston’s short life tells us so much about what it is to be human," by Richard Hain. April 25, 2015.

 

Huffington Post, "Dad writes heartbreaking tribute to wife who is carrying baby without brain to term," by Caroline Bologna, Feb. 21, 2017. 

Irish Independent, "Margaret was a joy for her two short days," Hilary Ní Lorcháin, March 30, 2013.

Irish Times, "‘Fatal foetal abnormality’ is a hurtful and damaging term," by Breda O'Brien, February 27, 2016.

Journal.ie, "Irish couple on the difficult choice they faced after their baby was diagnosed with a fatal foetal abnormality," by Catherine Healy, February 27, 2016.

 

Kalamazoo (Michigan) Gazette,  Mah LS. "When parents know they'll lose a baby: Kalamazoo-area programs help them make the most of their short time together." August 13, 2009.

Kansas City Star, Kavanaugh LH. "Love to last a lifetime," "Thanks to Alexandra's House, no family need grieve alone," "There's no shortcut through grief," "Zeke's gift: 'Hi, this is Mommy,'" and More resources package on perinatal hospice. April 15-16, 2007.

Lincoln (Neb.) Journal-Star, "Waverly family's story inspires people across the globe," by Erin Andersen, Sept. 19, 2013.

 

Los Angeles Times, Simon S. "Grief, gratitude and Baby Lee." Jan. 28, 2006, p. A1.

MSNBC.com, "When a baby is destined to die: Perinatal hospices support families with a terminal prenatal diagnosis," by Linda Dahlstrom, March 24, 2008.

New York Times, Banerjee N. "A place to turn when a newborn is fated to die," March 13, 2007, p. A1. 

Newsday, Talan J. "Preparing a welcome and saying farewell," Jan. 6, 2004, p. A36.

 

NewsTalk.com (Ireland), "Just getting to hold him and getting to say goodbye," Lunchtime with Jonathan Healy, Oct. 6, 2014.

 

Orange County (Calif.) Register, Ritchie EI. "They don't regret a single second." Oct. 9, 2008.

Orléans EMC newspaper, Ottawa, Ontario. "Mother recalls short time with son: Seven 'perfect' says she will cherish forever," by Tony Muma, Nov. 17, 2011.

Ottawa (Canada) Citizen, Deachman B. "Photographers give grieving parents something to hold onto." Aug. 3, 2015.

 

Peoria Journal-Star, "Their unborn daughter was dying. But a Dunlap family found a way to celebrate her life—and say goodbye," by Leslie Renken, April 23, 2016.

Philadelphia Inquirer health blog, "Perinatal hospice offers an alternative for parents of fetuses with terminal conditions," by Erica Cohen, April 11, 2013.

 

Polish Radio, Warsaw, Najfeld J. "Dignity in suffering." May 1, 2007.

Public Radio Exchange, Eddy M, producer. Four-part radio series on perinatal hospice. Sept. 25, 2005.

Radio Health Journal story about perinatal hospice, MediaTracks Communications, Pence R. September 2008; rebroadcast January 2011.

Raising Arizona Kids, Bashaw MA. "Finding purpose in grief: When birth and death merge." March 2011.

Reno Gazette-Journal, "Understanding pediatric palliative care," Oct. 21, 2013.

 

Sacramento Bee, Creamer A. "Baby Faith never left the hospital. But Tamara Scott's photographs give grieving parents a life to remember." Sept. 1, 2006, p. J1.
 

St. Paul Pioneer Press, "Grieving parents' memory boxes honor children's short lives," by Mary Divine Myers, March 22, 2015.

 

St. Petersburg (Fla.) Times, Rubenstein M. "Hospice doula becomes 'angel' amid loss." Sept. 11, 2009.

Seattle Times, Ostrom CM. "Seeking less-bitter ways to end conflicts on kids' medical care." July 13, 2007, p. A1.

 

6abc.com, "Viral 'bucket list' baby dies shortly after birth," Philadelphia, Oct. 9, 2014.

Sioux Falls (S.D.) Argus-Leader, Weinstein D. "Solace for sick kids." April 27, 2008.

Sydney Morning Herald (Australia), "Letting nature take its course," by Julia Medew, July 13, 2013.

 

Tampa Bay Times, Auman G. "One Buc and his wife keep faith in dire decision." July 31, 2015.

 

Taranaki (New Zealand) Daily News, "The hardest wait: Heartbreaking decisions for parents," by Helen Harvey, Oct. 12, 2013.

The Advertiser (Lafayette, Louisiana), "Ob/gyn learned her baby would die but chose to treasure the pregnancy," by Shari Puterman, March 7, 2016.

Today Show segment featuring Now I Lay Me Down to Sleep, March 5, 2008

Today.com, "Baby Zion's mother: Even in loss, we are 'anchored in hope,'" by Robbyn Blick, Feb. 12, 2014.

 

Today Parents, "A doctor's moving letter to any parent who's ever lost a baby," by Karen Johnson MD, April 7, 2016.

Today Show, NBC-TV, Sanders K. "Photographer helps parents heal." March 5, 2008

Toledo Blade, McKinnon JM. "Fatal diagnoses in the unborn bring new needs: Perinatal hospice becomes more common." Oct. 26, 2007.

 

Topic UK, Mason A. Forget Me Not Children’s Hospice continues to pioneer by employing Europe’s first hospice midwife. Aug. 16, 2017.

 

Wall Street Journal, Kincaid E. "When parents know their newborns won't live long." March 10, 2017.

 

Washington Post, "Perinatal hospice care prepares parents for the end, at life’s beginning," by Danielle Paquette, April 16, 2016.

 

Washington Post, "Photos provide keepsakes for parents grieving the death of a newborn," by Jason Bogage, July 3, 2016.

Washington Times, Duin J. "Choosing not to abort babies with disabilities." May 10, 2009.


Weekly Standard, "Day of Birth, Day of Mourning: My daughter is going to die on the day of her birth—and that's if we're lucky," by Jeremy Lott, June 25, 2017.

Wichita Eagle, Schideler K. "Aiden: A Life to Remember." Nov. 29, 2009.

WHAM-TV, "Parents document son's short life," Rochester, New York, May 8, 2014.


HEALTH MEDIA

Becker's Hospital Review,
"Regence becomes first US health plan with perinatal palliative care benefits," by Morgan Haefner, Aug. 17, 2016.

 

Canadian Medical Association Journal, Collier R. Providing hospice in the womb . Feb. 17, 2011.

Catholic Health World, "Perinatal hospice fills care gaps for families facing prenatal, newborn death." Catholic Health Association of the United States, Vol. 26, No. 5, March 15, 2010.

 

eHospice, "A closer look at perinatal palliative care," by Dr. Julia Ambler of Umduduzi Hospice Care for Children in South Africa, March 11, 2014

 

eHospice, Exploring referrals for perinatal palliative care. Sept. 16, 2013.

eHospice, "Perinatal and neonatal palliative care in the spotlight," by Sue Boucher, March 14, 2013.

 

eHospice, "Perinatal palliative care in Australia and New Zealand: Provision, problems and solutions," by Dominic Wilkinson MD, July 18, 2013.

 

eHospice, "Polish project offers perinatal palliative care," Feb. 8, 2017.
 

eHospice, "Shalome's Story," February 17, 2016.

 

Focus on the Family, "When Your Baby Won't Survive"

 

Journal of Perinatal and Neonatal Nursing, book review of Waiting with Gabriel, January-March 2005.

 

Medical Independent (Ireland), "Call for national perinatal palliative care services," by Catherine Reilly, April 16, 2015.

 

MedPage Today, "How perinatal hospice helps parents cope: Helping parents who want to continue a pregnancy despite baby's terminal illness," by Shannon Firth, Feb. 25, 2015.

 

Nurseweek Nursing Spectrum, Nurse.com, Clegg T. "Howard County Nurse Expands Perinatal Hospice Program." Nov. 2, 2009.

 

Palliative Care Australia, "Supporting parents after the death of a baby, as they grieve a myriad of lost wishes," by Heather Wiseman, March 6, 2017.

 

Pallimed: A Hospice & Palliative Medicine Blog, "'Incompatible with life,' compatible with love," by Amy Kuebelbeck, October 2016.

 

WebMD.com, "Neonatal palliative care: Focus on life," July 1, 2013.
 

 

See also the bibliography of medical journal articles on the Resources for caregivers page.

 


SPECIALIZED MEDIA

 

America Magazine, "The hospital program for parents facing tragic prenatal diagnoses​," by Kerry Weber, August 19, 2019

Arlington (Virginia) Catholic Herald, "When a baby's life is short," by Mary Stachyra Lopez, July 12, 2017.

 

BeliefNet.com, "Waiting with Gabriel," by Amy Kuebelbeck, excerpted April 2003.

Crux, "Perinatal care helps families deal with 'heartbreaking situations," by Charles C. Camosy, June 15, 2019

 

Catholic Communications, Sydney Archdiocese (Australia), "Leading the way in perinatal palliative care for babies and their families," Aug. 1, 2013.
 

Catholic New York, "Network being formed to help parents whose unborn babies are ill," Feb. 8, 2012.

Crosswalk, "Perinatal hospice: From womb to grave with love," by Chuck Colson, Sept. 1, 2009.

 

Crux, "Perinatal care helps families deal with 'heartbreaking situations," by Charles C. Camosy, June 15, 2019

 

Crux, "One mother's story of love and loss, and the impact of a child's short life," by Charles C. Camosy, Aug. 13, 2019

Forsyth Woman (Winston-Salem, North Carolina), "Brenner Children’s Hospital’s NICU Palliative 'Care Always' Program," by Meghan Corbett, March 5, 2016.

 

Harvard Law School Bill of Health blog, "Perinatal hospice: New theories about what choice means," by Allison M. Wheelan, April 6, 2013.

 

Lamaze International, Giving Birth with Confidence blog, "Support for pregnancy and birth after a fatal diagnosis," December 9, 2013.

 

MercatorNet (Auckland, New Zealand), "Hospice in the womb," by Carolyn Moynihan, Dec. 9, 2011.

 

Now I Lay Me Down to Sleep 10th anniversary commemorative magazine, "Perinatal Hospice: Hospice in the womb," by Amy Kuebelbeck, Fall 2015.

Patheos.com, "When your baby's life is expected to be brief: A look at perinatal hospice and palliative care," by Tony Rossi, Christopher Closeup, April 15, 2014.

Psychology Today blog, "A Gift of Time: Perinatal hospice is an unexpected source of joy and peace," by Deborah L. Davis, Ph.D., Dec. 15, 2011.
 

Publishers Weekly, "Coping with loss and tragedy," by Marcia Z. Nelson, June 30, 2003.

 

Publishers Weekly, Waiting with Gabriel book review, January 2003.

 

Publishers Weekly, Saints (and Sinners) Bare Their Souls, (review of Waiting with Gabriel) by LaVonne Neff, December 9, 2002. 

Still Standing magazine, "The baby in mamá's belly is going to die," by Cheli Blasco, March 27, 2014.

Wellness Network, "Supporting families and staff with palliative and bereavement care in the NICU," by Sue L. Hall MD, 

August 1, 2017.
 

Vatican Radio, "Pope sends message to conference on perinatal care," May 25, 2016.




"Saving Edwards," a 2010 documentary film produced in the Czech Republic by Dagmar Smržová. Tells the story of a couple expecting a baby with Edwards Syndrome (Trisomy 18) who choose to continue their pregnancy despite pressure from their doctors.

"Five Hours with Raja," a 2010 documentary film produced in New Zealand by director Anna McKessar. Tells the story of Claudia and Amit, a couple expecting a baby with anencephaly, who choose to embrace Raja's life. Broadcast on Al-Jazeera.


 

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