About the Authors

Amy Kuebelbeck is a freelance writer and former reporter and editor for The Associated Press and other news organizations. She described her experience of continuing a pregnancy with a life-limiting prenatal diagnosis in her memoir, Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life (Loyola Press, 2003), represented by literary agent Brian DeFiore of DeFiore and Company Author Services, New York, NY. The book received attention from a variety of media, and Publishers Weekly called it "exquisite." The book also was published in Italy as Aspettando Gabriel (Edizioni San Paolo, Milan, 2005) and in South Korea (Hainaim Publishing, Seoul, 2006), and it is used by many hospitals and clinics as a resource for patients.

 

Kuebelbeck edits the website PerinatalHospice.org, which she founded in 2006, and has been invited to speak at numerous medical conferences across the U.S., Canada, the Czech Republic, England, Italy, and New Zealand about the issues raised in her books. (A list of speaking events is here.) She founded a perinatal hospice e-mail group for caregivers in 2006, which now has more than 400 members, and continues to serve as moderator. She has written a number of articles to help explain perinatal hospice & palliative care to health professionals as well as the public, including this blog post and summary. She regularly shares perinatal hospice news with several thousand followers on Facebook and Twitter, and she also has been quoted by media including The New York Times and MSNBC.com in stories about perinatal hospice and related issues. She lives in Saint Paul, Minnesota.

Deborah L. Davis, Ph.D., is a developmental psychologist and writer who specializes in the emotional aspects of coping with crisis during pregnancy and infancy, including medical ethics and decision-making.  She is the author of four books for bereaved parents: Empty Cradle, Broken Heart: Surviving the Death of Your Baby (Fulcrum, 1996), Loving and Letting Go (Centering, 1993; 2002), When Courage Lies in Letting Go , formerly Fly Away Home (Centering, 2000) and Stillbirth, Yet Still Born(Fulcrum, 2014). As a member of the Colorado Collective for Medical Decisions, she collaborated in writing neonatal guidelines to support ethical and humane decision-making in the NICU (1999). She is a founding member and former board member of the Pregnancy Loss and Infant Death Alliance, a national group that promotes awareness and parent support, and supports the professionals who work with these families. Other recent books are Intensive Parenting: Surviving the Emotional Journey through the NICU (Fulcrum, 2013) and Parenting Your Premature Baby and Child: The Emotional Journey (Fulcrum, 2004), both co-written with Mara Tesler Stein, Psy.D. Dr. Davis is regularly invited to write articles for professional periodicals and parent support materials, and she is on the expert panel of Pregnancy.org. She lives in Denver, Colorado.

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